I was diagnosed with plasmablastic lymphoma (PBL) at the end of 2020. I initially had a swollen lump on the left side of my neck and was told it was only a swollen lymph node, but it didn't go away. A biopsy was done, which confirmed I had cancer, and I initially was in shock. Fortunately, I was immediately admitted to a local Providence hospital and was treated by an excellent oncologist who prescribed an intense chemotherapy regimen. The chemo effects were nausea, fatigue, and weight loss from lack of appetite. However, I was determined to fight this by taking daily walks, even when I felt sick.
I underwent a stem cell transplant that involved a three-week hospital stay, given massive chemo, followed by the extraction and freezing of my stem cells. During my hospital stay, I took daily walks through the hospital and used an exercise bike to maintain my body mass. My blood was tested several times, and my vitals were constantly checked, along with six spinal taps. The cells were then reinjected, and I was sent home to convalesce. I lost my entire head and body hair and 20 pounds. I continued taking daily walks and doing light chores to build my body back up. I rested when needed and ate a nutritious diet.
In summary, I was fortunate to have a team of experienced oncologists to plan my treatment, along with an excellent hospital nursing staff. My wife has been a constant support, and my passion for motorcycles and creating art has helped me through this. My advice to others is to maintain a positive attitude, get counseling if needed, follow your doctor's advice, and continue physical exercise during your treatment and afterwards.
Ted
plasmablastic lymphoma (PBL)
