Skip to main content

Clinical Trial Support Center (CTSC)

Blood cancer is personal. Finding a clinical trial is too.

Leave no stone unturned. Clinical trials can give you access to the latest blood cancer treatments.

Enrolling in a clinical trial can give you access to the latest cancer treatments—and with help from our Clinical Trial Nurse Navigators, you won’t have to do it alone.

Work one-on-one with a Clinical Trial Nurse Navigator

Our Nurse Navigators are registered nurses with expertise in pediatric and adult blood cancers. They can help identify clinical trial options for your cancer and unique situation and can personally assist you throughout the entire clinical trial process.

Connect with a Clinical Trial Nurse Navigator

This is a free service. All information is private and there is no fee or obligation to participate.

If you have any questions, email us!

What we do:

Educate patients and families about clinical trials

Help patients find and enroll in a clinical trial

Identify available financial assistance programs

Provide logistics and support throughout the clinical trial process

Search for clinical trials

Blood Cancer United has partnered with Carebox to provide a tool for patients and caregivers to search for blood cancer clinical trials.

Once you’ve had a chance to browse the trials, our Clinical Trial Nurse Navigators can help you understand what the trials entail, answer your questions, and walk you through the entire clinical trial process.

Search for clinical trials

Support for healthcare professionals

This service is also available to healthcare professionals who would like to connect patients with clinical trials.

Refer patients for clinical trial support

Real stories. Personal experiences.

Kate, Clinical trial patient

Kate meets her clinical trial oncology nurse for the first time as they share their experience.

A caregiver community that understands.

Leslie, a caregiver, talks about her experience with the CTSC, the benefits of a clinical trial, and why a clinical trial is not a “last resort.” To listen, click or tap the icons below.

Frequently asked questions (FAQs) 

Open each section below to learn more.

Some patients may think they should wait until standard treatment fails before they consider a clinical trial. However, clinical trials are not only for patients with disease that has relapsed or is refractory to treatment. A trial can be designed to test new treatment(s) in newly diagnosed patients, patients with a very limited disease, or patients whose disease is in remission and/or who are on maintenance therapy. 

A patient’s response to treatment can vary due to a number of factors including age, gender, genetics, ethnic origin, and weight. These differences can play a role in the safety and effectiveness of a medication since differences among people can lead to different responses to the same medication. It is essential to test treatments in a diverse population to ensure the results of the study are relevant to the general population. 

Placebos are not used in cancer clinical trials unless they are given along with an active drug. It is unethical to give someone solely a placebo if there is a treatment available that could work. If a placebo is part of the treatment in a clinical trial, you will be told in advance and your doctor will discuss the drug regimen in further detail with you. 

Clinical trials are highly regulated to ensure that patient safety is at the forefront of every trial. Patients enrolled in clinical trials are watched closely by the trial doctor, as well as by other members of their medical team, to ensure their safety. Every trial must follow a carefully designed treatment plan called a protocol, which details the care of the patient while on trial. Every center participating in a trial must adhere to the protocol to ensure patient safety and accurate data collection. All trials are overseen by an institutional review board that conducts reviews and audits to ensure adherence to the protocol and patient safety standards.

Clinical trials are appropriate treatment options for different types of patients, depending on the purpose and phase of the trial. It is important to speak to your doctor or your healthcare team about clinical trials. You can also work one-on-one with an Blood Cancer United Clinical Trial Nurse Navigator who will assist you throughout the entire clinical trial process. Our Clinical Trial Nurse Navigators are registered oncology nurses with expertise in blood cancers and clinical trials. 

Your Blood Cancer United Clinical Trial Nurse Navigator is an extension of your healthcare team. We perform a thorough assessment of your diagnostic and treatment history, prior medical history, and any non-clinical factors that may influence your ability to participate in a trial, such as geographic, financial, or social considerations. We encourage shared decision-making between the patient and their healthcare team and are available to help overcome barriers to clinical trial enrollment. 

Clinical trials are available for every stage of disease (newly diagnosed, relapsed/refractory, maintenance, remission and into survivorship). Talking with your healthcare team about clinical trials during every treatment discussion is important. 

Navigating your care: Clinical trials

Learn about the different types of clinical trials as a treatment for blood cancer, how they are different from standard treatment, as well as other types of studies that are available to people diagnosed with blood cancer.

Learn more about clinical trials

Need additional support?

Our Information Specialists are highly trained oncology social workers and nurses located in the U.S. who can personally assist you through cancer treatment and financial and social challenges, as well as provide accurate, up-to-date disease information and support.

Send us a message.

Call us +1-800-955-4572 | Monday–Friday, 9 a.m.–9 p.m. ET

Chat with us. | Monday–Friday, 10 a.m.–7 p.m. ET

Sponsors and supporters

Support for this service provided by:

list of sponsor logos

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.

Grace

Lymphoma Survivor

Greenberger et al. 2022. Blood Cancer Disc. T cell response and 3rd serological response.mRNA vaccine

Ellie

Leukemia survivor

photo of Patagonia

Shayne

Leukemia survivor

photo of Mount Killimanjaro

Matthew

Lymphoma & Leukemia Survivor

Survivor Latasha wearing bright yellow jacket, smiling

Latasha

Leukemia Survivor

Fast Company Brands That Matter 2022 Logo

Chase

Leukemia Survivor

Headshot of Chuck Pagano, Indianapolis Colts Head Coach

Chuck

Leukemia Survivor

Myeloma Link logo lock 10.26.22

Judy

chronic myeloid leukemia (CML)

Deanna

ALL Survivor

Cover - Teens Magazine

Donna

In memory

image of Shushan

Payton

Survivor

 

Brian

ALL Survivor

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.