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INTO-HLH: Hemophagocytic Lymphohistiocytosis Disease Registry
(Insight into the Natural History and Treatment Outcomes of Hemophagocytic Lymphohistiocytosis) is a disease registry aimed at advancing what is known…
National Lymphedema Network
To create awareness of lymphedema through education, and to promote and support the availability of quality medical treatment for all individuals at r…
Mabel
My name is Mabel. I was diagnosed with acute myeloid leukemia (AML) in December . I started aggressive treatment at Northside Hospital in Atlanta, GA.…
Suggested Reading - Stevie's New Blood
Adapted and read by both older and younger children Stevie is undergoing bone marrow transplant (BMT) in the hopes that it will cure his leukemia. Ann…
NAMI Helpline
Dedicated to building better lives for the millions of Americans affected by mental illness The National Alliance on Mental Illness (NAMI) Helpl…
Center to Advance Palliative Care
To increase the availability of quality palliative care services for all people living with serious illness. Provides health professionals with …
The Air Care Alliance (ACA)
To assist those in need of transport services such as patient transport, disaster relief, and educational experiences for youth, environmental support…
Myeloproliferative Neoplasms 3D Model
This model contains the following chapters. Click the "Interact in 3D button" to begin.Healthy Bone MarrowNormal Blood Cell ProductionEssential Thromb…
3D Models
A randomized clinical trial of oral vitamin A to reduce chronic graft versus host disease in BMT
Vitamin A is safe, well tolerated and positively affects gut immune health. Graft versus host disease (GVHD) is a complication of bone marrow transpl…
Manual
Since being diagnosed with myeloma, I've been glad to have the assistance of LLS. For one thing, research they helped fund resulted in Velcade®, one o…
Amy
I am years old and just learned that I have had polycythemia vera (PV) for years. My RBC, hemoglobin, and hematocrit levels are high and have been fo…
Stories
Nicole
My story begins back in . I remember it like it was yesterday. I was sitting in Orlando traffic with the window down. It was a beautiful afternoon. I …
Amanda
In at the age of , I went to my local ER three times for lower back pain and was sent home every time. After a wonderful Disney trip, I went to my lo…
Stephanie
I am years old. At the age of after having been very sick and misdiagnosed for over a year I was diagnosed at the Cleveland Clinic in May with Hodg…
Compassion & Choices
To improve care, expand options and empower patients to chart their journey. Offers a variety of programs, tools and resources (including in Sp…
Cameron
I am a stage anaplastic large cell lymphoma (ALCL) and secondary hemophagocytic lymphohistiocytosis (HLH) survivor. I was diagnosed back in October …
Dare 2 Dream
Stories
CML Advocates Network
To facilitate and support best between patient group organizers across the world. Informal online organization designed, published and moderate…
Ronald McDonald House Charities
To create, find and support programs that directly improve the health and well being of children. local chapters in countries and regions Ro…
Michael
I am a Acute Myeloid Leukemia survivor. I was diagnosed on memorial day of and thats where my story began. I failed to reach remission on induction c…
Angel Flight East
To provide free, air transportation to qualified patients and their families by arranging flights to distant medical facilities, delivering supplies …
Ethan
Ethan was a typical - boy before his diagnosis of acute lymphoblastic leukemia (ALL). Being a typical boy, he would have occasional bruises on his ar…
A Child’s Voice Foundation
To support and enhance the physical and emotional of disadvantaged children by providing products and services not otherwise provided by levels of go…
Nathan
Nathan is a young, lymphoma (TCL) survivor. He just rang the “end of treatment bell” a couple of months ago. His dad, Andy, is a member of The Leukem…
Help Hope Live
To support fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnes…
Christian
This is my son Christian Bienek, When he was years old, he was diagnosed with lymphoblastic lymphoma.After / years of chemo, Christian went into r…