Survivorship workbooks

The Survivorship Workbook: Navigating life during and after a blood cancer diagnosis

Our Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis can help you collect and organize all of the important information you need throughout diagnosis, treatment, follow-up care, and long-term management of a blood cancer. Because blood cancer and its treatments vary depending on a person's stage of life, we've developed a workbook tailored for each of them: adult, young adult, and children and adolescents. 

Choose the workbook that is best for you depending on your stage of life: 

Get the Survivorship Workbook in Spanish.

Take your workbook with you to appointments and fill out the tables and worksheets with help from members of your healthcare team. When you meet with new healthcare providers, you can share the information you've collected in the workbook. 

In each workbook, you will find:

  • Survivorship care plan worksheets
  • Long-term and late effects information
  • Healthy behavior recommendations
  • Mental health exercises and information
  • Resources for planning for the future

Survivorship resources

Webcasts

The Bloodline podcast 

 Listen to the episodes related to survivorship.

 Patti Robinson Kaufmann First Connection® Program 

A support program that links you with a trained peer volunteer who has experienced a similar situation. 

Coloring for Kids™ app:

This free coloring app allows children to express their creativity and also offers activities to help them learn about blood cancer and its treatment.

Get our free Health Manager App!

An example of the Health Manager app on an iPhone

Download the Blood Cancer United Health Manager App to track your health during treatment

Manage your health by tracking your side effects, medication, food and hydration, questions for your doctor, grocery lists, and more.Available in the Apple Store and Google Play.

Related links

Sponsors and supporters

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Adults and Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Children and Adolescents provided by:

support logo survivorship workbooks

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Young Adults provided by:

An image of the sponsors' logos whose support makes the Survivorship Workbooks possible.

Get free, one-on-one support

Call, email, or chat with a member of our highly trained support team.

Information Specialists

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Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

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Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Person wearing a wide-brimmed hat and hiking backpack stands outdoors against a scenic mountain landscape with evergreen trees and patches of golden foliage. The image highlights an active moment in nature and reflects resilience, strength, and quality of life within the blood cancer community, emphasizing the importance of survivorship and living well after a blood cancer diagnosis.

Jean

smoldering multiple myeloma (SMM)

Portrait of a blood cancer survivor wearing glasses, a light blue top, and a beaded necklace while seated indoors against a neutral background. The close-up image highlights a member of the blood cancer community and reflects survivorship, resilience, and the ongoing impact of blood cancer awareness, support, and advocacy.

Nancyjean

multiple myeloma (MM)

Black-and-white portrait of a blood cancer survivor standing beside large windows in a flowing formal gown with a long train. Natural light fills the room, highlighting a powerful moment that reflects resilience, survivorship, and the ability to celebrate meaningful life milestones while navigating a blood cancer journey.

Audrey

acute lymphoblastic leukemia (ALL)

Two members of the blood cancer community stand side by side indoors in a healthcare setting. One person wears a yellow T-shirt over a long-sleeve shirt, while the other wears a blue top with a dark cardigan and an ID badge. Medical equipment and a wall-mounted screen are visible in the background, reflecting the importance of support, advocacy, and connection throughout the blood cancer journey.

Judy

acute promyelocytic leukemia (APL)

Person stands in a hospital room beside an IV pole, wearing a red tank top, shorts, and hospital wristbands. Medical equipment, a hospital bed, and an infusion chair are visible in the background. The image highlights a moment during blood cancer treatment and reflects resilience, determination, and hope throughout the blood cancer journey.

Anthony

lymphoma

Vintage black-and-white family photograph showing two people seated together on a couch in a home setting with patterned wallpaper and framed artwork in the background. This historical image accompanies a blood cancer story and reflects family support, personal history, and the experiences of loved ones affected by blood cancer across generations.

Lori

Family member, healthcare professional

Family of five seated together on a sofa in a modern indoor setting. This image represents the role of family support throughout the blood cancer journey, highlighting caregiving, connection, and resilience for people affected by blood cancer, including patients, survivors, and their loved ones.

Rode

acute myeloid leukemia (AML)

Person seated in a medical exam room during a healthcare appointment, with blood pressure monitoring equipment visible in the background. This image represents the blood cancer journey, highlighting ongoing medical care, treatment monitoring, survivorship, and the importance of regular healthcare visits for people affected by blood cancer.

Johansa

multiple myeloma (MM)

Two people wearing dark jackets and baseball caps sit closely together on public transportation, illuminated by natural sunlight through a window. This candid image highlights the importance of family, caregiving, and support within the blood cancer community, reflecting the personal connections that help individuals and families navigate a blood cancer diagnosis, treatment, and survivorship journey.

Michael

Family member and supporter

Portrait of a person with long dark hair seated indoors, looking toward the camera in a home setting with framed artwork and flowers visible in the background. Image used to accompany a blood cancer patient, survivor, caregiver, or advocacy story focused on the blood cancer community, awareness, support, and personal experiences.

Lauren

acute lymphoblastic leukemia (ALL)

Headshot of Chuck Pagano, Indianapolis Colts Head Coach

Chuck

leukemia

Portrait of a young blood cancer survivor wearing a light blue collared shirt outdoors, with green trees and grass softly blurred in the background. The close-up image highlights a milestone moment in a blood cancer journey and reflects the importance of hope, support, and survivorship within the blood cancer community.

Palmer

Burkitt lymphoma (BL)

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The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.