Survivorship workbooks

The Survivorship Workbook: Navigating life during and after a blood cancer diagnosis

Our Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis can help you collect and organize all of the important information you need throughout diagnosis, treatment, follow-up care, and long-term management of a blood cancer. Because blood cancer and its treatments vary depending on a person's stage of life, we've developed a workbook tailored for each of them: adult, young adult, and children and adolescents. 

Choose the workbook that is best for you depending on your stage of life: 

Get the Survivorship Workbook in Spanish.

Take your workbook with you to appointments and fill out the tables and worksheets with help from members of your healthcare team. When you meet with new healthcare providers, you can share the information you've collected in the workbook. 

In each workbook, you will find:

  • Survivorship care plan worksheets
  • Long-term and late effects information
  • Healthy behavior recommendations
  • Mental health exercises and information
  • Resources for planning for the future

Survivorship resources

Webcasts

The Bloodline podcast 

 Listen to the episodes related to survivorship.

 Patti Robinson Kaufmann First Connection® Program 

A support program that links you with a trained peer volunteer who has experienced a similar situation. 

Coloring for Kids™ app:

This free coloring app allows children to express their creativity and also offers activities to help them learn about blood cancer and its treatment.

Get our free Health Manager App!

An example of the Health Manager app on an iPhone

Download the Blood Cancer United Health Manager App to track your health during treatment

Manage your health by tracking your side effects, medication, food and hydration, questions for your doctor, grocery lists, and more.Available in the Apple Store and Google Play.

Related links

Sponsors and supporters

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Adults and Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Children and Adolescents provided by:

support logo survivorship workbooks

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Young Adults provided by:

An image of the sponsors' logos whose support makes the Survivorship Workbooks possible.

Get free, one-on-one support

Call, email, or chat with a member of our highly trained support team.

Information Specialists

Clinical Trial Nurse Navigators

Registered Dietitians

Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

Patient Resources

Caregiver Resources

Health Care Professional Resources

Financial Support

Newsroom

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Our Patient Community

Blood Cancer United Registry

Other Helpful Organizations

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Close-up portrait of an individual standing outdoors near a building, wearing a patterned top and hoop earrings, highlighting strength, community connection, and personal stories within the blood cancer community and survivorship awareness.

Courtney

multiple myeloma (MM)

A visitor standing near the Colosseum in Rome smiles in the sunlight, wearing glasses and a beige patterned top with a black shoulder strap. The ancient stone arches rise behind them against a clear blue sky, capturing a travel moment while raising awareness for blood cancer through inclusive, human‑centered storytelling.

Joan

double-hit lymphoma (DHL)

Copilot said: Family of four stands together on an outdoor deck overlooking a city skyline and water, wearing matching advocacy shirts including “Dear Jack Foundation” and “I wear purple for my dad,” highlighting awareness, support, and community connection in the blood cancer community.

Lyndsey

Family member, caregiver, advocate

Individual stands behind a desk in a clinical or office setting wearing dark scrubs, with medical equipment and supplies visible nearby—highlighting care, frontline support, and dedication within the blood cancer community and patient care environment.

MaryAnn

multiple myeloma (MM)

Close-up selfie of an individual seated in a car wearing sunglasses on their head and a seatbelt, with sunlight and greenery visible outside—highlighting everyday life, strength, and lived experience within the blood cancer community and survivorship awareness.

Sharon

essential thrombocythemia (ET)

Close-up selfie of an individual wearing glasses and a collared shirt in an office setting, with a small heart poster visible in the background—highlighting everyday support, advocacy, and connection within the blood cancer community and survivorship awareness.

Elizabeth

multiple myeloma (MM)

Adult and young child take a close-up selfie indoors, both wearing event shirts and a lanyard badge, representing family support and connection within the blood cancer community and childhood blood cancer awareness.

Stacey

acute lymphocytic leukemia (ALL)

Two children sit together on a hospital bed, sharing a tablet and covered with a blanket, with medical equipment nearby—capturing a moment of comfort, connection, and childhood resilience within the blood cancer community and pediatric blood cancer care.

Sky

Family member, caregiver, and advocate

Close-up selfie of an individual wearing a black cap and layered chain necklaces indoors, highlighting personal strength, resilience, and everyday life within the blood cancer community and survivorship awareness.

John

Family member

Copilot said: Person stands outdoors holding an illuminated lantern at a Light The Night event, with a large screen in the background showing participants raising lights and the message “Thank you for bringing light to the darkness of cancer,” highlighting advocacy, community support, and awareness in the blood cancer community.

Natalia

splenic marginal zone non-Hodgkin lymphoma (MZL)

Copilot said: Close-up of two older adults seated together indoors, smiling and leaning side by side at a table, highlighting support, connection, and shared experiences within the blood cancer community and survivorship awareness.

Lawrence

acute myeloid leukemia (AML)

Copilot said: Person riding a road bike at high speed through a curved, tree-lined road during an organized race, wearing a bright green cycling kit with a visible race number, highlighting strength, endurance, and active living in the blood cancer community and survivorship awareness.

Ethan David

Family member and advocate

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The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.