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Navigating blood cancer care for young adults

Receiving a blood cancer diagnosis at any age is overwhelming. For young adults, it's often an unexpected shock that can disrupt life and limit independence with breathtaking speed.  

If you’re a young adult with blood cancer, know you are not facing this diagnosis alone. We have the support, resources, and a community that understands what you're going through. We can help you learn ways to retain your independence, be your own advocate, and if you’re interested, become an advocate for others with blood cancer.

Working with your care team 

Choosing a blood cancer specialist or a treatment center for young adults

One of the first choices you’ll make for your care will be selecting a specialist to manage your treatment and/or choosing a treatment center. Here’s what to consider.

Blood, bone marrow, and the lymphatic system in young adults

Knowing how your blood, bone marrow, and the lymphatic system all work within the body will help you better understand your blood cancer diagnosis and treatment options.

Lab and imaging tests for young adults

Your doctor may use several of these common lab and imaging tests to help diagnose your cancer or find certain genetic characteristics that will help them decide the right treatment for you.

How to organize your medical records

Keeping organized records of tests and information helps you play a more active, informed role in your care. You can find suggestions on what your files should include; we also offer our free Health Manager app to help you stay organized.

Communicating with your specialist and care team as a young adult

Understand who’s who on your healthcare team and the questions you might want to ask them throughout your treatment journey.

Your treatment options 

Making blood cancer treatment decisions as a young adult

Learn how to get a second opinion, questions to ask your care team, before you move forward with a treatment plan.

Types of blood cancer treatment for young adults

Your treatment plan will be tailored to your specific type of blood cancer, but there are some common cancer treatments you may discuss with your doctor.

Integrative medicine and complementary therapies for young adults

Complementary therapies can boost your well-being without interfering with standard treatments. Find out how they might help manage symptoms and reduce side treatment effects.

Know your rights, manage your finances

Managing finances and insurance coverage for young adults

Use these tools, guides, and lists of free resources to help manage your finances before, during, and after treatment.

Managing school during blood cancer treatment as a young adult

Some people continue to attend school through cancer treatment; others take a leave of absence. Find resources to help you make decisions about college or training programs.

Employment rights of young adult cancer survivors and caregivers

Learn how to best protect yourself from employment discrimination by advocating for your rights in the workplace.

Managing daily life

How do I tell people I have cancer?

As a young adult with blood cancer, how much you choose to share about your diagnosis—and with whom—is your personal choice. Here are some things to consider when making these important decisions.

Parenting as a young adult with blood cancer

Juggling parenting with cancer treatments isn’t easy, especially if you are a young parent who is finding yourself relying on caregivers during treatment. Use these tips to help you, your children, and caregivers cope with the changes.

Managing blood cancer treatment side effects as a young adult

Reactions vary from person to person, but you can learn more about common side effects that you may experience from your treatment and how to cope with them.

Vaccination and blood cancer for young adults

Find guidance and resources for young adults undergoing blood cancer treatment.

Fertility and reproductive health for young adults

Learn about the factors to consider before you begin your treatment and the steps you can take to maximize your ability to have a child in the future.

Sexual health and intimacy for young adults

Find out what to expect, how to cope, and how to talk to your partner and your healthcare team about intimacy.

Food and nutrition for young adults

Understand how a healthy diet will keep your body strong, support your immune system, and may even help you tolerate treatment side effects better.

Home care for young adults

Find out about different types of home care, if it’s the right choice for you, and what to ask your doctor.

End-of-life care for young adults

The terminal phase of an illness may require you, your loved ones, and your family to make important and difficult decisions. Find resources for the emotional, financial, and legal support you may need at this time.

Mental health in young adults

The term “mental health” includes your emotional and psychological well-being. Your mental health guides how you handle stress, manage relationships, and make decisions. Mental health, like physical health, is important to your overall well-being.

Survivorship and life after treatment 

Follow-up care and survivorship for young adults

Follow-up care, staying healthy, and managing long-term treatment side effects can help you get back to doing what you love.

Firefighters and blood cancer risk in young adults

Some occupations, including firefighting, come with an increased risk for blood cancer due to certain environmental exposures. Find how to mitigate those risks as well as available resources.

Additional resources for young adults

Find additional materials, booklets, videos, podcasts, and more to support you and your caregiver while undergoing cancer treatment.

Get FREE personalized information and support.

Highly trained oncology professionals with expertise in pediatric and adult blood cancers are available to speak with patients, one-on-one, at absolutely no cost.

Blood cancer information specialists

Connect with oncology social workers and nurses who provide patients and caregivers with accurate disease and treatment information along with access to comprehensive resources and support.

Call Toll Free: +1-800-955-4572 | Live Chat | Email

Clinical trial nurse navigators

Get support from registered nurses with expertise in blood cancers who personally assist patients and caregivers throughout each step of the clinical trial process.

Request Support | Email

Registered dietitians

Speak to a registered dietitian who has expertise in oncology nutrition and provides patients and their caregivers with free nutrition consultations, by phone.

Schedule

Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Blood cancer patient wearing a knit beanie and glasses embraces a loved one during a hospital visit. The image highlights the importance of caregiver support, resilience, and hope throughout blood cancer treatment. Set in a healthcare environment, the photo reflects the experiences of blood cancer patients and families navigating diagnosis, treatment, recovery, and survivorship together.

Kerrie

acute lymphoblastic leukemia (ALL)

leukemia patient weaing glasses and blue shirt at the beach

Paul

acute lymphoblastic leukemia (ALL)

Family of four posing together by a waterfront during a holiday celebration, with festive clothing and seasonal accessories. The image reflects the strength of families affected by blood cancer, highlighting the support, love, and togetherness that help patients and caregivers navigate blood cancer treatment, survivorship, and everyday milestones.

Jennifer

Mother and caregiver

Family affected by blood cancer poses together at a tropical beach destination surrounded by palm trees and bright sunshine. The image highlights the importance of family support, resilience, and making meaningful memories after a blood cancer diagnosis. It represents hope, survivorship, and the impact of blood cancer treatments and support services that help patients and their loved ones navigate leukemia, lymphoma, myeloma, and other blood cancers while celebrating milestones together.

Kelli

Philadelphia chromosome-positive B-cell acute lymphoblastic leukemia (Ph+ B-ALL)

Young child receiving medical care in a hospital bed with a nasal feeding tube, wearing a colorful shirt with animal prints. The image highlights the realities of childhood blood cancer treatment while showcasing strength, hope, and resilience. This photo represents the experiences of pediatric blood cancer patients and families navigating treatment, supportive care, and survivorship.

Kyle

Family member and caregiver

inspirational-stories-blood-cancer-bill.jpg

Bill

multiple myeloma (MM)

five-year-old leukemia survivor, Vera Padilla of Sacramento, CA

Monica

Family member, caregiver, advocate

Nevaeh age 2 standing outside in a lacy white summer dress, cowbow boots and hat, and a huge smile

Nevaeh

acute myeloid leukemia (AML+MLLr)

Portrait of a child standing in a grassy field surrounded by wildflowers and greenery, wearing a navy button-down shirt. The image represents hope, resilience, and childhood blood cancer awareness, highlighting the experiences of young blood cancer patients, survivors, and families while emphasizing the importance of research, support, and community.

Henry

B-cell acute lymphoblastic leukemia (B-ALL)

Jarvis, Pre B acute lymphoblastic leukemia (ALL) patient

Jarvis

Pre-B acute lymphoblastic leukemia (ALL)

Savanna and Asher, pediatric blood cancer patient, holding a sign "Asher is a perfect match"

Savanna

pre-B-cell acute lymphoblastic leukemia (pre-B-ALL)

Rachel, pediatric blood cancer as an adult at the same stem cell transplant unti they were treated

Rachel

acute lymphoblastic leukemia (ALL)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.