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Elsie is
Blood Cancer United

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In November 2013, after experiencing several severe nose bleeds, I was diagnosed with a rare type of non-Hodgkin lymphoma cancer called Waldenstrom macroglobulinemia. It was in stage IV and I started chemotherapy treatments immediately.

For close to two years, there was little effect from the treatments. Finally, one of the chemo drugs started showing a positive sign and the cancer in my blood was going down. However, not long after, I had a severe side effect from this drug, an acute liver failure that had me feeling worse than the chemo treatments. I was now dealing with cancer and liver failure.

A procedure was recommended to help alleviate fluid that was retained in my abdomen from my liver not working; my abdomen extended like a mother ready to give birth. That procedure was not successful and nearly took my life. The stress left me with post traumatic stress disorder (PTSD). I now had three medical problems; cancer, liver failure, and PTSD. I wrote a book that tells the moving and inspiring story of my cancer diagnosis, the medical treatments I experienced, and how I brought myself back to wellness through a healthy diet.

I am healthy, even though I am living with cancer. There is no cure for this disease, and at some point, I may need treatments again, but will never give up. Many thought I might not make it. I said, “Don’t go digging my grave!” For anyone facing cancer in its many forms, I want them to know it is possible to take their life back, to live on, and live healthily.

Elsie

Non-Hodgkin lymphoma (NHL) survivor

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Headshot of Steven, who has Non-Hodkins Lymphoma

Steven

Waldenstrom macroglobulinemia (WM)

person reclining in a maroon medical chair with legs extended, wearing a blue long-sleeve shirt and green pants. The individual has a bandage and medical tubing on one arm and is giving a thumbs-up gesture. Surrounding the chair are various medical devices, including an IV pole, infusion pumps, and a monitor. A television screen is visible in the background on the left side.

Joe

Waldenström’s macroglobulinemia (WM)

A person wearing a bright blue long-sleeve shirt, gray shorts, and a blue helmet is standing on a paved path with a silver mountain bike. The individual has a large black backpack and is positioned in a desert-like environment with scattered green trees and shrubs. In the background, there are single-story houses with red-tiled roofs under a clear blue sky. wa

Ron

Waldenström macroglobulinemia (WM)

Phil with a guitar smiling in a patterned shirt inside

Phil

Waldenström Survivor

Smiling woman with brick wall behind

Fely

WM survivor

Bruce, cancer survivor, standing in front of house, arm around his adult daughter

Bruce

Waldenstrom’s macroglobulinemia (WM)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.