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Elsie is
Blood Cancer United

In November 2013, after experiencing several severe nose bleeds, I was diagnosed with a rare type of non-Hodgkin lymphoma cancer called Waldenstrom macroglobulinemia. It was in stage IV and I started chemotherapy treatments immediately.

For close to two years, there was little effect from the treatments. Finally, one of the chemo drugs started showing a positive sign and the cancer in my blood was going down. However, not long after, I had a severe side effect from this drug, an acute liver failure that had me feeling worse than the chemo treatments. I was now dealing with cancer and liver failure.

A procedure was recommended to help alleviate fluid that was retained in my abdomen from my liver not working; my abdomen extended like a mother ready to give birth. That procedure was not successful and nearly took my life. The stress left me with post traumatic stress disorder (PTSD). I now had three medical problems; cancer, liver failure, and PTSD. I wrote a book that tells the moving and inspiring story of my cancer diagnosis, the medical treatments I experienced, and how I brought myself back to wellness through a healthy diet.

I am healthy, even though I am living with cancer. There is no cure for this disease, and at some point, I may need treatments again, but will never give up. Many thought I might not make it. I said, “Don’t go digging my grave!” For anyone facing cancer in its many forms, I want them to know it is possible to take their life back, to live on, and live healthily.

Elsie

Non-Hodgkin lymphoma (NHL) survivor

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Phil with a guitar smiling in a patterned shirt inside

Phil

Waldenström Survivor

Smiling woman with brick wall behind

Fely

WM survivor

Elsie

Non-Hodgkin lymphoma (NHL) survivor

Headshot of Steven, who has Non-Hodkins Lymphoma

Steven

Non-Hodgkin lymphoma (NHL)

Bruce, cancer survivor, standing in front of house, arm around his adult daughter

Bruce

Waldenstrom’s macroglobulinemia (WM)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.