I have a rare blood cancer. It is Waldenstrom macroglobulinemia (WM), a type of non-Hodgkin lymphoma (NHL), but some doctors say it has the same characteristics as POEMS syndrome.
I have very painful neuropathy, and it affects my legs and feet to the point that some days I cannot walk.
I have a spinal cord stimulator with the battery implanted in my back.
I am thankful to The Leukemia & Lymphoma Society (LLS) for my grants and all the other assistance, especially through this COVID pandemic.
Steven
Non-Hodgkin lymphoma (NHL)
