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Nina
Back in March , my then - daughter was not feeling well. She had severe abdominal pain, overwhelming fatigue, night sweats, a fever, a headache, and…
Communicating as a Caregiver
Communicating With the PatientYou and your loved one will need to be open and honest with each other from the start. Remember that you are both on the…
Exploiting escape from Y-inactivation as a synthetic dependency in MYC-driven lymphoma
As a lymphoma develops it expresses genes that are normally silenced to convey a survival advantage. When these genes are on the X or Y (sex chromosom…
Understanding the drug resistance mechanism and developing new therapeutic strategies for Hairy Cell Leukemia variant
Most of the Hairy Cell Leukemia variant patients do not respond to conventional therapies. They develop resistance to the chemotherapy drugs and we wi…
Cancer Financial Assistance Coalition (CFAC)
A coalition of financial assistance organizations joining forces to help cancer patients experience better health and by limiting financial challenge…
CML Society of Canada
To help reduce suffering and to improve the care and quality of life of CML patients; to provide support, education and information on CML, current an…
LGL Leukemia Registry at UVA
To learn more about this rare form of blood cancer and how to treat it. Based at the University of Virginia Cancer Center in Charlottesville, un…
The Myelodysplastic Syndromes (MDS) Foundation, Inc.
A , international organization devoted to MDS support, research, treatment, and education for patients, caregivers, physicians, nurses and other healt…
MPN Voice
To provide information, community and advocacy for patients diagnosed with a myeloproliferative neoplasm (such as essential thrombocythemia, polycythe…
Jeff
Meet Jeff, follicular lymphoma survivor. During an annual physical, Jeff noticed a lump under his arm, and after a biopsy it was discovered that he ha…
Targeting Siglec15 to promote immune response to malignant B cells
The goal of this project is to explore a novel immunologic therapeutic target for hematologic malignancies, SIGLEC15 (Sig15). The central hypothesis i…
Patient Experience Research and Palliative Care Integration in Malignant Hematology
My research aims to improve the patient and caregiver experience of blood cancer care. To achieve this, I conduct trials of integrated palliative care…
Genomic interrogation of high-risk myeloid neoplasms to identify new therapies
The goal of my research program is to improve the outcomes for patients with myeloid blood cancers, particularly those with loss of chromosome or C…
Therapeutic exploitation of novel mouse models and metabolic interventions in leukemia
Our research program aims to gain a deeper understanding of the pathobiology of and HSTL.To this end, we will use novel mouse models, techniques and…
HealthTree Foundation
To empower patients each step of their disease journey from diagnosis, through education, care and on to a cure.Provides integrated software platforms…
Together by St. Jude
Produced by St. Jude Children’s Research Hospital, Together by St. Jude is an online resource providing information and education for families facing …
Strategic combinations to overcome therapeutic resistance and relapse in acute myeloid leukemia
Acute myeloid leukemia (AML) is the most fatal type of leukemia and has a high rate of relapse following current therapies. We have recently uncovered…
Suggested Reading - Cancer Fitness: Exercise Programs for Patients and Survivors
Most cancer patients and survivors think that "rest" will decrease their fatigue and speed their recovery. But in fact, rest can make most patients we…
Suggested Reading - Handbook for Mortals: Guidance for People Facing Serious Illness
Designed for caregivers as well as patients, this book combines insight and inspiration with practical information and suggestions for coping with cri…
A precision-based all-oral combination of venetoclax, oral decitabine, and IDH1/2 targeted inhibition for patients with IDH1 or IDH2 mutated AML
My ultimate goal is to develop more effective, better tolerated, and individualized treatment for patients with AML. This project focuses on AML patie…
Max
My son Max was diagnosed with lymphoma in May , just days before his 19th birthday. He discovered a lump under his chin a few months before, and in …
Matthew
Three months into my husband’s yearlong deployment to South Korea, Captain Matthew Marggraf started noticing a painless lump forming on the side his n…
Brian
Brian was diagnosed with a rare form of Burkett’s related, lymphoma in May . He currently receives both and chemotherapy, with cycles where he rec…
Jayson
On October , , I was diagnosed with acute myeloid leukemia (AML) at the age of . Before cancer, I moved through life without a care in the world, livi…
Dare 2 Dream
Kevin
My brest friend, Kevin McDowell has dreamed of going to the Olympics for triathlon since he was years old. Shortly after winning bronze at the ITU Ju…