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Barry
I was diagnosed with lymphoma in May of . The diagnosis came after three or four months of tests attempting to diagnose a lump from my neck (which w…
Heart Beat
For patients pursuing fertility preservation services prior to cancer treatment, Ferring Pharmaceuticals and Walgreens Specialty Pharmacy have develop…
Videos for school personnel
The following videos were created to assist school personnel in supporting a student attending school during or after cancer treatment, and their clas…
YAconnect: Young Adults Living with Leukemia, Lymphoma and Myeloma
SHP2 and BCL2 Inhibition in Acute Myeloid Leukemia
The goal of our work is to use a “bench to bedside and back” approach to develop new treatments for patients with relapsed/refractory AML. Through gen…
Dental and oral health for children and teens
Side effects of cancer treatment may cause a variety of problems affecting the mouth, teeth, and jaw that can have an impact on a child's quality of l…
Support Resources
Communicating with your blood cancer specialist or care team
How to advocate for your careLearn about your diagnosis and treatment optionsConsider clinical trialsDon’t be afraid to seek a second opinionUnderstan…
Support Resources
Communicating with your specialist or care team as a young adult
Communication with your specialist and the team coordinating your care is very important. Share with your doctor how much you want to know about your …
Support Resources
Are Clinical Trials Safe?
U.S. clinical trials are designed to give patients the safest, potentially most effective clinical therapies. Clinical trials are conducted once resea…
Charlie
At two and a half years old, Charlie was diagnosed with acute lymphoblastic leukemia (ALL).Soon after being diagnosed, she underwent surgery to insert…
Operation Liftoff Inc.
To provide hope for courageous and frightened children with air transportation for a treatment trip. Due to budget constraints, Operation Liftof…
How to brighten holidays in the hospital for cancer patients
Cancer treatment doesn’t pause for the holidays. While the world outside is filled with lights and laughter, inside the hospital walls, patients are o…
Blog
Castleman Disease Collaborative Network (CDCN)
Dedicated to accelerating research and treatment for Castleman Disease (a group of inflammatory disorders) to improve survival for all patients. …
Sexual health and intimacy
Although not always discussed, sexual health and intimacy are an important part of your , even after a cancer diagnosis. Please note: If you have expe…
Support Resources
Mouth and Throat Sores
The lining of your mouth and throat are particularly susceptible to damage from cancer treatment. Chemotherapy and other anticancer drugs can cause th…
Nancy
I was diagnosed with multiple myeloma in . For a year, I was in the “watch and wait” category with no treatment until the disease progressed. In April…
Zeke
On April , , I brought my son Ezekiel "Zeke" to a sick appointment because of leg pain, stomach pain, and a fever over the last few days. We were sent…
Stories
Rocco
Our little Roc was diagnosed with leukemia on June . We immediately started treatment at Joe DiMaggio Children’s Hospital on July where Rocco was giv…
Dental and oral health
Side effects of blood cancer treatment may cause a variety of problems affecting the mouth, teeth, and jaw that can have an impact on your quality of …
Support Resources
Dental and oral health in young adults
Side effects of cancer treatment may cause a variety of problems affecting the mouth, teeth, and jaw that can have an impact on your quality of life. …
Support Resources
Immune Deficiency Foundation
To improve the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. …
Suggested Reading-What Happens When a Kid Has Cancer
Join Mia and her stuffed giraffe Stuart as they explain the science of cancer and how a child’s diagnosis and treatment affects their life. With the …
Next-Generation Targeted Therapy in Mantle Cell Lymphoma and Transformed Follicular Lymphoma
The field of cancer treatment has made remarkable progress with the adoption of targeted therapy; however, small molecule drugs have limitations such …
Suggested Reading - Living with Lymphoma
2nd Edition A comprehensive resource for coping with medical, emotional and practical challenges. The author, who is a lymphoma survivor, thoroughly e…
Trish
After being diagnosed with indolent follicular lymphoma (NHL) in , I set off on a course of watch- for two years. This was followed by an idiotype v…
Communicating with your specialist or care team
Communication with your specialist and the team coordinating your care is very important. Tell your doctor how much you want to know about your diagno…