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Primary immunodeficiency diseases are a group of more than 350 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. These diseases are caused by hereditary or genetic defects. Because one of the most important functions of the normal immune system is to protect against infection, people with primary immunodeficiency diseases commonly have an increased susceptibility to infection.


 

Immune Deficiency Foundation

Contact:
800-296-4433
Population Served:

Patients and families affected by primary immunodeficiency diseases

Mission:

To improve the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

  • Provides educational information and up-to-date publications
  • Connects patients and their families with others who have gone through similar situations to share experiences, encouragement and understanding
  • Patients receive individual help with questions about insurance, physician location, personalized instructional materials, and access to care and treatment
  • Local, regional and national level educational meetings featuring leading immunologists
  • Consulting Immunologist Program provides physicians the opportunity to consult with expert clinical immunologists about patient-specific questions and obtain valuable diagnostic, treatment and disease management information.

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Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Blood cancer patient wearing a knit beanie and glasses embraces a loved one during a hospital visit. The image highlights the importance of caregiver support, resilience, and hope throughout blood cancer treatment. Set in a healthcare environment, the photo reflects the experiences of blood cancer patients and families navigating diagnosis, treatment, recovery, and survivorship together.

Kerrie

acute lymphoblastic leukemia (ALL)

leukemia patient weaing glasses and blue shirt at the beach

Paul

acute lymphoblastic leukemia (ALL)

Snapshot of Tricia with her family, a cancer survivor

Tricia

Staff

Jane, Hodgkin lymphoma (HL) patient, with companion

Jane

Hodgkin lymphoma

Gianna, Hodgkin lymphoma (HL) patient and advocate, pictured with other supporters

Gianna

Hodgkin lymphoma (HL)

Two people are sitting close together indoors near a window. One person is wearing a dark top, and the other is wrapped in a purple and black patterned blanket. The background shows part of a beige wall and a window frame with daylight coming through.

Kelsey

acute myeloid leukemia (AML)

Cyclist wearing a blood cancer awareness fundraising jersey rides a road bike during an organized endurance event. The jersey features blood cancer advocacy messaging and supports efforts to fund research, patient support, and treatments. The image highlights the dedication of blood cancer supporters, survivors, and advocates who participate in athletic fundraising events to help improve outcomes for people affected by leukemia, lymphoma, myeloma, and other blood cancers.

Bill

chronic lymphocytic leukemia (CLL)

Blood cancer patient sitting on a hospital bed during treatment alongside a supportive family member in a healthcare setting. Medical wristbands and treatment lines are visible, highlighting the realities of blood cancer care and recovery. The image reflects the vital role of caregivers, family support, and resilience throughout a blood cancer diagnosis, treatment, and survivorship experience, emphasizing hope and connection during a challenging time.

Elizabeth

Family member, caregiver, advocate

Side-by-side portraits showing a blood cancer survivor and Team In Training participant in 2012 and 2022. In the first image, the individual wears a Team In Training shirt and points to the program logo. In the second image, the same individual stands wearing multiple race medals earned through endurance fundraising events. The photo illustrates a decade of resilience, survivorship, and advocacy in the blood cancer community, highlighting the impact of fundraising, patient support, and blood cancer research.

Max

non-Hodgkin lymphoma (NHL)

Childhood photo of two young children sitting indoors in dress clothes in front of a couch and decorative pillows. The image represents the personal story behind a blood cancer survivor, highlighting the importance of childhood blood cancer awareness, patient support, survivorship, and hope for families affected by blood cancer.

Ali

Family member and supporter

Participants run in a road race near the iconic Unisphere in Queens, New York, during a community fundraising event supporting blood cancer patients, survivors, and blood cancer research. Several runners wearing race bibs move through the course on a bright sunny day, highlighting awareness, advocacy, and support for the blood cancer community.

Matt

Hodgkin lymphoma (HL)

Family of four posing together by a waterfront during a holiday celebration, with festive clothing and seasonal accessories. The image reflects the strength of families affected by blood cancer, highlighting the support, love, and togetherness that help patients and caregivers navigate blood cancer treatment, survivorship, and everyday milestones.

Jennifer

Mother and caregiver

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.