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Primary immunodeficiency diseases are a group of more than 350 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. These diseases are caused by hereditary or genetic defects. Because one of the most important functions of the normal immune system is to protect against infection, people with primary immunodeficiency diseases commonly have an increased susceptibility to infection.


 

Immune Deficiency Foundation

Contact:
800-296-4433
Population Served:

Patients and families affected by primary immunodeficiency diseases

Mission:

To improve the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

  • Provides educational information and up-to-date publications
  • Connects patients and their families with others who have gone through similar situations to share experiences, encouragement and understanding
  • Patients receive individual help with questions about insurance, physician location, personalized instructional materials, and access to care and treatment
  • Local, regional and national level educational meetings featuring leading immunologists
  • Consulting Immunologist Program provides physicians the opportunity to consult with expert clinical immunologists about patient-specific questions and obtain valuable diagnostic, treatment and disease management information.

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Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
A selfie taken inside a vehicle shows a blood cancer survivor sitting beside a large brown dog wearing a harness and orange collar. The dog is positioned prominently in the foreground, while the individual wears sunglasses and a seatbelt. The candid photo highlights the comfort, companionship, and everyday moments that support many people affected by blood cancer during survivorship and recovery.

Kaitlyn

survivor

Two people wearing bright yellow banana costumes pose outdoors near an active volcanic eruption, with lava and a large plume of smoke rising in the background. The playful travel photo captures a memorable moment of adventure, humor, and connection. The image accompanies a blood cancer survivor story, reflecting resilience, celebrating life after a blood cancer diagnosis, and finding joy in meaningful experiences.

Thomas

acute lymphoblastic leukemia (ALL)

Portrait of a blood cancer advocate standing in front of a red Leukemia & Lymphoma Society event backdrop, wearing a wide-brimmed hat, glasses, and a patterned top. The image highlights community engagement, blood cancer awareness, and support for patients, survivors, and families affected by leukemia, lymphoma, myeloma, and other blood cancers. Featured as part of a blood cancer survivor story, the photo reflects advocacy, resilience, and the impact of collective action in the blood cancer community.

Angie

Philadelphia-positive acute lymphoblastic leukemia (Ph+ ALL)

A blood cancer volunteer stands with a bicycle at Mount Rushmore National Memorial, with the iconic mountain monument and visitors visible in the background. Wearing cycling gear and protective arm sleeves, the individual poses during a long-distance cycling adventure that supports blood cancer awareness and advocacy. Featured in a blood cancer survivor story, the image highlights resilience, perseverance, and life beyond a blood cancer diagnosis while inspiring hope for others affected by leukemia, lymphoma, myeloma, and other blood cancers.

Darin

Volunteer and supporter

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Georgia

mixed phenotype acute leukemia (MPAL)

Close-up indoor portrait of a blood cancer survivor wearing a burgundy polka-dot blouse, illuminated by natural window light. The image accompanies a blood cancer survivor story, highlighting resilience, advocacy, and life after a blood cancer diagnosis. This authentic portrait reflects the strength of individuals affected by leukemia, lymphoma, myeloma, and other blood cancers, while emphasizing hope, survivorship, and the importance of support within the blood cancer community.

Anna

mantle cell lymphoma (MCL)

Close-up portrait of a blood cancer survivor standing along a coastal cliff at sunset, with the ocean and shoreline visible in the background. The individual wears a patterned head covering and a light-colored sweatshirt while looking toward the camera. Featured in a blood cancer survivor story, the image highlights resilience, hope, and finding moments of peace during and after blood cancer treatment. The scenic setting reflects strength, healing, and the support that helps people affected by leukemia, lymphoma, myeloma, and other blood cancers move forward.

Liz

acute myeloid leukemia (AML)

Outdoor portrait of a blood cancer survivor standing on a sidewalk in a landscaped neighborhood, wearing a black top and a colorful statement necklace. Trees and greenery create a natural backdrop. Featured in a blood cancer survivor story, the image highlights resilience, hope, and life beyond a blood cancer diagnosis. The photo represents the strength of individuals affected by leukemia, lymphoma, myeloma, and other blood cancers, while emphasizing the importance of awareness, support, and survivorship.

Sharon

non-Hodgkin lymphoma (NHL)

Close-up indoor selfie showing an older adult wearing glasses and a red shirt while holding a baby. Soft natural light fills the room, highlighting a meaningful family moment across generations. Featured in a blood cancer survivor story, the image reflects the importance of family, resilience, and celebrating everyday milestones after a blood cancer diagnosis. The photo represents hope, connection, and the support that helps individuals and families navigate the blood cancer experience.

Joseph

plasma cell leukemia (PCL)

Portrait of a blood cancer advocate standing in front of a green floral background featuring a white dove graphic. The individual wears glasses and a sleeveless top while posing for the camera. Featured as part of a blood cancer survivor story, the image highlights awareness, remembrance, resilience, and community support for people affected by leukemia, lymphoma, myeloma, and other blood cancers. The photo reflects hope and the lasting impact of blood cancer advocacy and patient storytelling.

Joan

Family member and supporter

A participant wearing a purple Team In Training race jersey and bib number runs along a scenic waterfront path bordered by wildflowers, with mountains and water visible in the background. The image highlights endurance, advocacy, and fundraising efforts for blood cancer research and support services. Featured in a blood cancer survivor story, the photo represents resilience, determination, and the collective impact of the blood cancer community working toward better treatments and outcomes for people affected by leukemia, lymphoma, myeloma, and other blood cancers.

Christine

Family member, supporter, and donor

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Lisa

acute myeloid leukemia (AML)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.