Skip to main content

Lymphedema refers to swelling that generally occurs in the arms and/or legs. Lymphedema results from a blockage in the lymphatic system, most commonly caused by the removal of or damage to lymph nodes as a part of cancer treatment. The blockage prevents lymph fluid from draining well, and the fluid buildup leads to swelling.


 

Lymphatic Education & Research Network

Contact:
516-625-9675
Population Served:

Patients, caregivers, health professionals worldwide

Mission:

To fight lymphatic diseases and lymphedema through education, research, and advocacy.

  • Provides disease, treatment and clinical trial information; patient registry; educational programs, newsletters and journal
  • Advocates for lymphatic disease research and sponsors research grants and awards
  • Has chapters in the US and abroad.

National Lymphedema Network

Contact:
800-541-3259 or 510-809-1660
Population Served:

Patients, health professionals worldwide

Mission:

To create awareness of lymphedema through education, and to promote and support the availability of quality medical treatment for all individuals at risk for or affected by lymphedema.

  • Provides referrals to lymphedema treatment centers, health professionals, training programs, suppliers, support groups, pen pals/net pals, clinical trials
  • Offers financial aid for compression garments to eligible patients
  • Offers quarterly newsletter, online resource guide, educational materials for patients and health professionals
  • Supports research into the causes of lymphedema and possible alternative treatments
  • Biennial international conference for health professionals.

Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
five-year-old leukemia survivor, Vera Padilla of Sacramento, CA

Monica

Family member, caregiver, advocate

Nevaeh age 2 standing outside in a lacy white summer dress, cowbow boots and hat, and a huge smile

Nevaeh

acute myeloid leukemia (AML+MLLr)

Reese, pediatric blood cancer survivor, with white Light The Night lantern, standing outside

Reese

juvenile myelomonocytic leukemia (JMML)

Portrait of a child standing in a grassy field surrounded by wildflowers and greenery, wearing a navy button-down shirt. The image represents hope, resilience, and childhood blood cancer awareness, highlighting the experiences of young blood cancer patients, survivors, and families while emphasizing the importance of research, support, and community.

Henry

B-cell acute lymphoblastic leukemia (B-ALL)

Jarvis, Pre B acute lymphoblastic leukemia (ALL) patient

Jarvis

Pre-B acute lymphoblastic leukemia (ALL)

Savanna and Asher, pediatric blood cancer patient, holding a sign "Asher is a perfect match"

Savanna

pre-B-cell acute lymphoblastic leukemia (pre-B-ALL)

Rachel, pediatric blood cancer as an adult at the same stem cell transplant unti they were treated

Rachel

acute lymphoblastic leukemia (ALL)

Two men with arms around each others shoulders

Kabir

acute lymphoblastic leukemia (ALL)

Liam smiling-sitting on a hospital bed in a diaper-chemo port taped to his chest-bald from treatment

Liam

acute myeloid leukemia (AML)

Headshot of Isabelle - a young woman with blond hair and blue eyes

Isabelle

Acute lymphoblastic leukemia (ALL)

A blood cancer patient sitting outdoors in a red chair, holding a young child on their lap while relaxing in a grassy, sunlit setting, with trees and a peaceful backyard environment in the background.

Clare

peripheral T-cell lymphoma (PTCL)

A young child stands indoors on a hardwood floor wearing a lavender dress, colorful socks, and a pink head wrap. The portrait highlights a moment of confidence and individuality during a blood cancer experience, capturing the resilience of children and families navigating treatment, recovery, and survivorship. This image reflects hope, strength, and everyday life affected by pediatric blood cancer.

Kelly

Family member and caregiver

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.