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Lymphedema refers to swelling that generally occurs in the arms and/or legs. Lymphedema results from a blockage in the lymphatic system, most commonly caused by the removal of or damage to lymph nodes as a part of cancer treatment. The blockage prevents lymph fluid from draining well, and the fluid buildup leads to swelling.


 

Lymphatic Education & Research Network

Contact:
516-625-9675
Population Served:

Patients, caregivers, health professionals worldwide

Mission:

To fight lymphatic diseases and lymphedema through education, research, and advocacy.

  • Provides disease, treatment and clinical trial information; patient registry; educational programs, newsletters and journal
  • Advocates for lymphatic disease research and sponsors research grants and awards
  • Has chapters in the US and abroad.

National Lymphedema Network

Contact:
800-541-3259 or 510-809-1660
Population Served:

Patients, health professionals worldwide

Mission:

To create awareness of lymphedema through education, and to promote and support the availability of quality medical treatment for all individuals at risk for or affected by lymphedema.

  • Provides referrals to lymphedema treatment centers, health professionals, training programs, suppliers, support groups, pen pals/net pals, clinical trials
  • Offers financial aid for compression garments to eligible patients
  • Offers quarterly newsletter, online resource guide, educational materials for patients and health professionals
  • Supports research into the causes of lymphedema and possible alternative treatments
  • Biennial international conference for health professionals.

Blood Cancer United resources

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We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
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Rode

acute myeloid leukemia (AML)

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Kyle

Lymphoma

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Peyton

non-Hodgkin lymphoma (NHL)

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acute myeloid leukemia (AML)

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chronic lymphocytic leukemia (CLL)

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Tracey

Chronic lymphocytic leukemia (CLL)

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Sonia

chronic lymphocytic leukemia (CLL)

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smoldering multiple myeloma (SMM)

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multiple myeloma (MM)

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Family member and supporter

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multiple myeloma (MM)

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acute lymphoblastic leukemia (ALL)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.