Survivorship workbooks

The Survivorship Workbook: Navigating life during and after a blood cancer diagnosis

Our Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis can help you collect and organize all of the important information you need throughout diagnosis, treatment, follow-up care, and long-term management of a blood cancer. Because blood cancer and its treatments vary depending on a person's stage of life, we've developed a workbook tailored for each of them: adult, young adult, and children and adolescents. 

Choose the workbook that is best for you depending on your stage of life: 

Get the Survivorship Workbook in Spanish.

Take your workbook with you to appointments and fill out the tables and worksheets with help from members of your healthcare team. When you meet with new healthcare providers, you can share the information you've collected in the workbook. 

In each workbook, you will find:

  • Survivorship care plan worksheets
  • Long-term and late effects information
  • Healthy behavior recommendations
  • Mental health exercises and information
  • Resources for planning for the future

Survivorship resources

Webcasts

The Bloodline podcast 

 Listen to the episodes related to survivorship.

 Patti Robinson Kaufmann First Connection® Program 

A support program that links you with a trained peer volunteer who has experienced a similar situation. 

Coloring for Kids™ app:

This free coloring app allows children to express their creativity and also offers activities to help them learn about blood cancer and its treatment.

Get our free Health Manager App!

An example of the Health Manager app on an iPhone

Download the Blood Cancer United Health Manager App to track your health during treatment

Manage your health by tracking your side effects, medication, food and hydration, questions for your doctor, grocery lists, and more.Available in the Apple Store and Google Play.

Related links

Sponsors and supporters

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Adults and Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Children and Adolescents provided by:

support logo survivorship workbooks

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Young Adults provided by:

An image of the sponsors' logos whose support makes the Survivorship Workbooks possible.

Get free, one-on-one support

Call, email, or chat with a member of our highly trained support team.

Information Specialists

Clinical Trial Nurse Navigators

Registered Dietitians

Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

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Blood Cancer United Registry

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Kerrie

acute lymphoblastic leukemia (ALL)

leukemia patient weaing glasses and blue shirt at the beach

Paul

acute lymphoblastic leukemia (ALL)

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Tricia

Staff

Jane, Hodgkin lymphoma (HL) patient, with companion

Jane

Hodgkin lymphoma

Gianna, Hodgkin lymphoma (HL) patient and advocate, pictured with other supporters

Gianna

Hodgkin lymphoma (HL)

Two people are sitting close together indoors near a window. One person is wearing a dark top, and the other is wrapped in a purple and black patterned blanket. The background shows part of a beige wall and a window frame with daylight coming through.

Kelsey

acute myeloid leukemia (AML)

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Bill

chronic lymphocytic leukemia (CLL)

Blood cancer patient sitting on a hospital bed during treatment alongside a supportive family member in a healthcare setting. Medical wristbands and treatment lines are visible, highlighting the realities of blood cancer care and recovery. The image reflects the vital role of caregivers, family support, and resilience throughout a blood cancer diagnosis, treatment, and survivorship experience, emphasizing hope and connection during a challenging time.

Elizabeth

Family member, caregiver, advocate

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Max

non-Hodgkin lymphoma (NHL)

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Ali

Family member and supporter

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Matt

Hodgkin lymphoma (HL)

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Jennifer

Mother and caregiver

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The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.