Survivorship workbooks

The Survivorship Workbook: Navigating life during and after a blood cancer diagnosis

Our Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis can help you collect and organize all of the important information you need throughout diagnosis, treatment, follow-up care, and long-term management of a blood cancer. Because blood cancer and its treatments vary depending on a person's stage of life, we've developed a workbook tailored for each of them: adult, young adult, and children and adolescents. 

Choose the workbook that is best for you depending on your stage of life: 

• Survivorship Workbook for Adults: Navigating Life During and After a Blood Cancer Diagnosis

• Survivorship Workbook for Young Adults: Navigating Life During and After a Blood Cancer Diagnosis

• Survivorship Workbook for Children and Adolescents: Navigating Life During and After a Blood Cancer Diagnosis

Get the Survivorship Workbook in Spanish.

Take your workbook with you to appointments and fill out the tables and worksheets with help from members of your healthcare team. When you meet with new healthcare providers, you can share the information you've collected in the workbook. 

In each workbook, you will find:

• Survivorship care plan worksheets
• Long-term and late effects information
• Healthy behavior recommendations
• Mental health exercises and information
• Resources for planning for the future

Survivorship resources

Webcasts

• Thriving Beyond Pediatric Blood Cancer (May 14, 2025)
• The Power of Conversation: Helping Families Communicate with Care Teams (March 12, 2025)
• Childhood ALL: A Roadmap To The Future (June 13, 2024)
• Summer Fun for Young Patients & Survivors (May 22, 2024)
• Love, Strength, Support: Sibling care in pediatric blood cancer journeys (February 22, 2024)
• Coping with Childhood Blood Cancer: The Power of Play and Creative Therapies for Families (December 7, 2023)
• Let's Talk About Childhood Cancer: The Impact of Leukemia in Black Children (September 19, 2023)
• Family Dynamics: Navigating The Pediatric Cancer Experience (September 14, 2023)
• Treatment Advancements for Acute Lymphoblastic Leukemia (ALL) in Children and Adults (February 16, 2023)
• Living And Growing As A Family After Cancer (February 2022)

The Bloodline podcast 

 Listen to the episodes related to survivorship.

 Patti Robinson Kaufmann First Connection® Program 

A support program that links you with a trained peer volunteer who has experienced a similar situation. 

Coloring for Kids™ app:

This free coloring app allows children to express their creativity and also offers activities to help them learn about blood cancer and its treatment.

Related links

• Navigating your blood cancer care
• Navigating blood cancer care for young adults
• Navigating blood cancer care for children and teens
• Communicating With Your Healthcare Team: Survivorship
• Managing Stress: How stress affects you and ways to cope

Sponsors and supporters

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Adults and Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Children and Adolescents provided by:

Support for the Survivorship Workbook: Navigating Life During and After a Blood Cancer Diagnosis for Young Adults provided by: