Three years ago, I started getting really sick. I had just graduated from college and was trying to figure out my next steps. After eight months of going in and out of the hospital and seven lumbar punctures, I was diagnosed with stage 4 splenic marginal zone non-Hodgkin lymphoma (SMZL). The cancer had spread to my central nervous system, and I experienced intense brain fog, confusion, and tremendous pain. I immediately underwent four rounds of rituximab and have since been on low-dose methotrexate and immunotherapy. Unfortunately, there is no cure yet for my diagnosis, so I continue to live with many side effects and symptoms.
Blood Cancer United has been my biggest supporter throughout this journey, and I’ve had the opportunity to work closely with the San Diego/Hawaii Blood Cancer United region as a Community Outreach Volunteer and peer mentor. Participating in Visionaries of the Year in 2024, my team and I managed to raise over $90,000, donated to indolent lymphoma research. I am passionate about increasing access to Spanish-language resources, and with help from Blood Cancer United-sponsored podcasts, Cafecito, and the S.H.A.R.E. program, I’ve been able to share my story of resilience and gratitude in both English and Spanish!
Overall, I have benefited from many of Blood Cancer United's programs and met some of my closest friends through volunteering. The research funded by Blood Cancer United led to the development of the treatment that is helping preserve both my life and quality of life. Inspired by everything I have learned through Blood Cancer United and my own cancer experience, I launched a nonprofit called Fourth SpaYce, dedicated to advocating for young adults with cancer and making existing resources easier to find and understand for adolescents and young adults (AYAs). When I was going through the hardest parts of my journey, I did not have the energy to search for helpful resources. I would love the opportunity to share my story and my project with other AYAs so we can connect and help one another find the support we need.
Living with blood cancer is not easy, but it would be significantly harder without organizations like Blood Cancer United providing such incredible support.
Natalia
splenic marginal zone non-Hodgkin lymphoma (MZL)
