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Booklet updates: ​Myelodysplastic Syndromes (MDS)


The following drug updates are listed by booklet title. This information is not found in the current version of these booklets, as these treatments were not FDA approved at the time the books were published.

Myelodysplastic Syndromes and The MDS Guide: Information for Patients and Caregivers

  • In June 2024, the Food and Drug Administration (FDA) approved imetelstat (Rytelo) for the treatment of adult patients with low- to intermediate-1 risk myelodysplastic syndromes (MDS) with transfusion-dependent anemia requiring four or more red blood cell units over eight weeks who have not responded to or have lost response to or are ineligible for erythropoiesis-stimulating agents (ESA).

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Headshot of Imani in her white nursing coat

Imani

myelodysplastic syndrome (MDS)

Paul

multiple myeloma (MM) and myelodysplastic syndrome (MDS)

Headshot of Todd wearing suit and tie, a cancer survivor

Todd

Volunteer

Portrait of Jason, volunteer

Jason

LLS Volunteer

Pam, a blood cancer survivor, wearing a red hat and smiling

Pam

Myelodysplastic syndromes (MDS)/acute myeloid leukemia (AML)

Please CLICK HERE for the program flyer.

Madeline

AML Survivor

Denisse

LLS Volunteer

Woman in a Team In Training tank, holding up her Disney medal in front of TNT/LLS banner

Johanna

Supporter

Alaska LFA Zip Code List

Sandy

Supporter

Snapshot of Sudha, who is LLS volunteer

Sudha

LLS Volunteer

Katie, volunteer, with companion

Katie

Volunteer

Lynette

Volunteer

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