Skip to main content

Makenzie is
Blood Cancer United

NCA Survivorship...8.24.23 logo lock

My daughter Makenzie was diagnosed with chronic myeloid leukemia (CML) in January 2013, when she was just four years old. She had no signs or symptoms of leukemia. One day, Makenzie had a sore throat and we made an appointment with her pediatrician. Turns out she did have strep throat, but an exam also revealed her spleen was very enlarged. At that point, her pediatrician did bloodwork and learned that Makenzie's white cell count was through the roof. We were sent to Texas Children’s Hospital where later that evening she was diagnosed with CML. We were informed there was no cure but it was treatable. So to this day, in our home, we always say “Thank God for strep throat.”  If it wasn’t for that appointment and her awesome pediatrician, Makenzie may not have bounced back or the results might not have been the same.

This news all came as a huge shock to our family. How could our healthy, full-of-energy little girl have leukemia? It was very hard to take it all in, as for anyone. It had a huge impact on our family and our daily lives and left a lot of “what if's?"

Makenzie is now 6 and in kindergarten and loves to dance, sing, do cheerleading, ride her bike, roller skate and just be outdoors. We recently took a trip to Colorado and learned that she is a natural at ice skating, so we may be on to something there now too! 

Currently, Makenzie takes a pill form of chemo each evening and this treatment has been working very well for her. We have gone from weekly appointments to biweekly to monthly and now we are going once a quarter. Today, there is less than 1% of leukemia detected in her blood and she is considered in molecular remission.

CML is very rare in children as it typically occurs in older adults. Although Makenzie’s leukemia is being maintained by this drug, there are still a lot of unknowns ahead of us. So this is where The Leukemia & Lymphoma Society (LLS) comes into play and the funds received can help with breakthroughs on research. Makenzie’s current treatment is a testament of that. We want to thank LLS for funding blood cancer research and thanks to everyone who supports and gives to this wonderful organization.
 

Leighann

Survivor

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
inspirational-stories-chronic-myeloid-leukemia-angela

Angelia

chronic myeloid leukemia (CML)

Leigh, in front of windows in a very tall building, city below, with her Big Climb medal and t-shirt

Leigh

Chronic myeloid leukemia (CML)

Kendra

chronic myeloid leukemia (CML)

Isabel

chronic myelogenous leukemia (CML)

Myeloma Link logo lock 10.26.22

Judy

chronic myeloid leukemia (CML)

Louis

CML Survivor

Gregg

Survivor

Tri-State BCC 3.4.23 sponsors 1.5.23

Jeffrey

CML Survivor

Virginia

CML Survivor

A man with group of 3 women in black & orange, holding sign saying Team Casey with lymphoma ribbon

Casey

CML Survivor

Picture of man, woman, and two boys, and one girl, all wearing NASA shirts in front of rocket

Joyce

Supporter

Bethany Shantz with her family, a cancer survivor

Bethany

CML Survivor

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.