In late August 2024, I received the awful news that my father had been diagnosed with pancreatic cancer. Living oceans apart, I was riddled with anxiety and fear for his health and life. In September, I noticed my immune system weakening. I started to lose weight, and I contracted my first infection, which required a series of antibiotics. As the months went on, the infections were recurring, and I eventually stopped having my monthly cycle. By November, I had lost 20 pounds and noticed swollen lymph nodes on either side of my neck. Health professionals assured me that they were swollen because my body was trying to fight the infections. At this time, I started having chronic itchiness, starting on my legs and later spreading all over my body. I was prescribed eczema creams, which provided no relief.
Finally, in March 2025, I checked myself into the emergency room after experiencing high blood pressure, dizzy spells, and sharp pains in my abdomen and chest area. This is the first time anyone had done a blood test. After several biopsies and scans, I was diagnosed with stage 4 Hodgkin lymphoma (HL) at 28 years old. I immediately had to uproot my life to move back in with my family as I underwent six months of chemotherapy. I had to leave my job, pay to break my lease, pay to move my belongings into storage (as well as pay for the storage monthly), pay for my flight across the country, apply for and pay for insurance in a new state, as someone with a critical illness. The list of expenses is endless.
Thankfully, I am now in remission and hope to somewhat return to my life in 2026, though the physical and psychological toll will be with me for many years to come. I’ve worked with a social worker through Blood Cancer United who was able to point me in the direction of some financial assistance grants as I try to get back on my feet. For this, I am extremely grateful!
Khetsiwe
Hodgkin lymphoma (HL)
