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Howie is
Blood Cancer United

In January 2014 I got pneumonia for the third in under two years. The hematologists examined my blood and suspected CLL, since my white-blood count was so low. Then a bone-marrow biopsy confirmed this. This certainly explained my inability to fight infections. I skipped all the steps in the grieving process and went straight to acceptance: It is what it is.

Since I was out in the Seattle area with my daughters and grandchildren, I ended up staying out here for my treatment. So, I had not been home to Illinois in over ten months, but being with my kids and grandkids has helped me emotionally.

My first treatment in February 2014 was a biologic called Rituxan, which helped for a while. Then the oncologist upped the treatment to include a chemo called Bendamustine. The treatments were tolerable: no vomiting, no nausea, no hair loss. I was generally able to take walks, and I never really lost my appetite, although in retrospect, my wife and children claimed they had to remind me to eat. Soon my swollen lymph nodes began to shrink, and my blood numbers improved. In October 2014 I had another bone-marrow biopsy, and a week later I had another CT scan.

On November 4, 2014, I found out that the biopsy showed no evidence of cancer, and the CT scan also showed that things were normal. So, the doctor declared that I was in complete remission!

Apparently, I'll never be truly cancer-free, but remission is okay. I still have to get checked by the oncologist on a regular basis (four times a year), and have been remission now for five years.

Howie

Leukemia Survivor

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Copilot said: Close-up selfie of an older adult wearing glasses and a navy shirt with an “I Voted” sticker, seated in a car, highlighting everyday resilience and community engagement within the blood cancer community and survivorship journey.

Fred

non-Hodgkin lymphoma (NHL) and chronic lymphocytic leukemia (CLL)

Two runners celebrate together while crossing a city race course, an image reflecting blood cancer awareness, endurance events, and community support.

Deb

Family member, volunteer, supporter/donor

Arturo Pierre, a middle aged black man bald with mustache and beard wearing black glasses and a grey suite and white shirt sitting on steps

Arturo Pierre

chronic lymphocytic leukemia (CLL)

inspirational-stories-chronic-lymphocytic-leukemia-diffuse-large-b-cell-lymphoma-norman

Norman

chronic lymphocytic leukemia (CLL) and diffuse large B-cell lymphoma (DLBCL)

A runner wearing a purple Team In Training jersey and hat proudly holds up a finisher’s medal and a race cup, standing beneath a bright Disney Marathon Weekend sign. Sunlight shines across the scene, highlighting the determination and joy in this celebratory moment—capturing the spirit of hope, strength, and solidarity shared by those running to support people affected by blood cancer.

Carol

Family member and supporter

A blood cancer patient stands in a driveway at sunset holding a road bike, wearing a helmet, cycling jersey, and shorts, with a white pickup truck and suburban homes in the background, conveying strength, activity, and determination.

Philip

chronic lymphocytic leukemia (CLL)

Headshot of Mike, a CLL Survivor

Mike

chronic lymphocytic leukemia (CLL)

Headshot of Angela in front of books in library, a cancer survivor

Angela

chronic lymphocytic leukemia (CLL)

Smiling mature man wearing red shirt and glasses in front of row of boats

Marty

chronic lymphocytic leukemia (CLL)

inspirational-stories-chronic-lymphocytic-leukemia-jay.jpeg

Jay

chronic lymphocytic leukemia (CLL)

Blood cancer survivor wearing a light-colored jacket stands outdoors at night holding a glowing white lantern and a blue light stick. At Light The Night. Behind them is a large illuminated inflatable sign that reads “FIGHT” in bold red letters, set against a dark background with trees faintly visible.

Tracey

chronic lymphocytic leukemia (CLL)

A cyclist stands outdoors beside a bicycle, wearing a neon green jacket, black shorts, helmet, sunglasses, and patterned black socks. They smile at the camera with a waterfront marina full of sailboats and a large building in the background. The scene includes large trees with exposed roots and another person sitting on a bench with a bicycle nearby, suggesting a sunny, recreational outing in a coastal setting.

Malcolm

chronic lymphocytic leukemia (CLL)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.