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Ed is
Blood Cancer United

inspirational-stories-multiple-myeloma-ed

I was diagnosed with multiple myeloma (MM) in April 2015. Like everyone else, you hear the word “cancer” and fear hearing any more details. Meeting with my oncologist, I was assured that this was treatable and should not be a big concern. He was right! In a few weeks, my cancer marker numbers, referred to as light chains, dropped significantly and for the last 10 years of treatment have remained in the 100# area. The team at the Hematology Oncology Center at Penn State Hospital has been very helpful. Doctors, nurse practitioners, and nurses have been so kind, and after this long of treatment feel like friends rather than my medical team.

Of course, undergoing chemotherapy means that my immune system has been compromised. Because of this, I have had COVID-19 two, maybe three times. I was in the hospital for severe flu with pneumonia and responded well to treatment. I try to avoid being around sick people, and all things considered, I am perfectly content with the treatment I am receiving. At 83 years old, I don’t expect to live a really exciting life at this time. I am able to enjoy a lot of activities and have many friends whom I love to spend time with. I continue to tell people that being kept alive for 10 years means that my doctors must be doing something right, and I should have nothing to complain about. 

Ed

multiple myeloma (MM)

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Person wearing a wide-brimmed hat and hiking backpack stands outdoors against a scenic mountain landscape with evergreen trees and patches of golden foliage. The image highlights an active moment in nature and reflects resilience, strength, and quality of life within the blood cancer community, emphasizing the importance of survivorship and living well after a blood cancer diagnosis.

Jean

smoldering multiple myeloma (SMM)

Person seated in a medical exam room during a healthcare appointment, with blood pressure monitoring equipment visible in the background. This image represents the blood cancer journey, highlighting ongoing medical care, treatment monitoring, survivorship, and the importance of regular healthcare visits for people affected by blood cancer.

Johansa

multiple myeloma (MM)

Portrait of a blood cancer survivor wearing glasses, a light blue top, and a beaded necklace while seated indoors against a neutral background. The close-up image highlights a member of the blood cancer community and reflects survivorship, resilience, and the ongoing impact of blood cancer awareness, support, and advocacy.

Nancyjean

multiple myeloma (MM)

Close-up portrait of an individual wearing glasses and a dark shirt indoors, with a clear view of facial features against a softly blurred background—highlighting personal strength, advocacy, and lived experience within the blood cancer community and survivorship awareness.

Marty

multiple myeloma (MM)

Studio-style portrait of an older adult wearing a striped dress shirt and red patterned tie against a soft blue background—highlighting personal legacy, remembrance, and the lasting impact of individuals within the blood cancer community and awareness efforts.

Laurence

multiple myeloma (MM)

Individual stands outdoors in front of tall city buildings wearing athletic gear and a race bib numbered 2483, hands on hips after a race—highlighting strength, endurance, and active advocacy within the blood cancer community and survivorship awareness through fitness and fundraising events.

Sally

multiple myeloma (MM)

Person sitting in a hospital bed during blood cancer treatment, holding a medical collection bag while connected to clinical monitoring equipment. The image highlights blood cancer survivorship, stem cell transplant care, patient resilience, and advances in treatment for leukemia, lymphoma, and myeloma.

Haley

multiple myeloma (MM)

Portrait of a blood cancer survivor wearing glasses and looking toward the camera. This image represents blood cancer survivorship, patient advocacy, lymphoma and leukemia awareness, and the strength of the blood cancer community.

Julie

IgG lambda multiple myeloma ISS-R

Man wearing gray shirt, looking down

Dan

multiple myeloma (MM)

Jaime, Myeloma Survivor, photographed in athletic gear

Jamie

Myeloma Survivor

Close-up portrait of an individual standing outdoors near a building, wearing a patterned top and hoop earrings, highlighting strength, community connection, and personal stories within the blood cancer community and survivorship awareness.

Courtney

multiple myeloma (MM)

Individual stands behind a desk in a clinical or office setting wearing dark scrubs, with medical equipment and supplies visible nearby—highlighting care, frontline support, and dedication within the blood cancer community and patient care environment.

MaryAnn

multiple myeloma (MM)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.