I was diagnosed in 2017 with multiple myeloma (MM). It was truly a fluke that it was found. I had no symptoms. One day, I had a high heart rate for a while and thought I would touch base with a cardiologist we knew. Over a series of months, I went through some testing. We were not in a hurry as I was feeling fine.
All tests were fine from a cardiology standpoint, but I was told that “something” might be stressing the heart, but it was not the heart itself. I was sent to my PCP to check my thyroid.
My PCP did a full panel of testing, including checking my iron level, which is not typically tested. My iron was sky high, yet I was anemic. All you have to do is Google that combination, and it comes up with MM.
I went to a hematologist, and it was confirmed.
I did a ton of research and spoke to many patients across the country. I wanted to go to someone who “writes the book” and does not “follow the book.” Things were changing so fast with MM, and there were only a few true experts, though you find oncologists who treat it.
I ended up at UAMS. They have a world-renowned multiple myeloma program. I had a tandem stem cell transplant.
I had three years of maintenance with Dex, Kyprolis®, and Revlimid®.
I have been in remission since the initial induction chemotherapy. Of course, we do not know how long that will last, but hopefully forever!
I get my blood markers tested every two months and will have annual PT, MRI, and bone marrow tests.
Debra
multiple myeloma (MM)
