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Alyssa is
Blood Cancer United

In March 2017, after not feeling well for over a year,  Alyssa was diagnosed with histiocytosis disease. Even though she wasn’t feeling her best, she graduated that year with National Honor Society honors and received a scholarship from Valparasio University. She was excited to go to college and fulfill her dream of going into the medical field. But her plans changed when she developed a high fever while on family vacation that summer.

In July 2017, Alyssa began to have breathing issues and continued to spike fevers on a daily basis. She was admitted to Children’s Hospital and her tests showed something like pneumonia in her lungs. Weeks passed and Alyssa spent her 18th birthday in the hospital. Then we got a diagnosis and it shocked us all – Alyssa had anaplastic large cell lymphoma.

Alyssa began chemotherapy treatments immediately after the diagnosis. The first round seemed to go well, but, on August 8 we almost lost her.  All of the medications she was on caused a severe reaction triggering a cardiac arrest. The doctors performed CPR for two minutes before restoring a normal heart rhythm with a shock to her heart. She spent the next several days sedated in the ICU and on a breathing tube. After her second round of chemo the fevers were gone and she no longer needed oxygen to breathe. She has finished up all of her chemo and there are no signs of lymphoma. She went back to volunteering at the St. Louis Children’s Hospital, which she had also done throughout her senior year.

Recently, Alyssa has been having issues with her legs and we believe it is related to sarcoidosis. At times, she has to stay in the hospital due to high calcium levels. She will keep fighting and hopefully be attending Valparaiso University in the fall to work on her physician’s assistant degree. We formed a Light The Night team for her called “Team Alyssa” and we walked last year at the Light the Night Walk in St. Louis. Our team raised well over $1,000. We will be back this year with a bigger team and raising more money.

Alyssa

Lymphoma Survivor

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Lisa and a man standing in a football stadium holding white, yellow and red Light The Night lanterns

Lisa

Lymphoma survivor

James, volunteer and survivor, pictured with group of friends

James

Volunteer and survivor

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Lynette

Volunteer

Headshot of Todd wearing suit and tie, a cancer survivor

Todd

Volunteer

A blood cancer patient stands with friends at an outdoor Blood Cancer United event, wearing colorful leis and holding heart-shaped signs while posing together in front of a branded backdrop, creating a celebratory and supportive atmosphere.

Carlos

non-Hodgkin lymphoma (NHL)

Portrait of a blood cancer survivor wearing glasses and a checkered button-down shirt while seated indoors against a neutral background. The image highlights resilience, advocacy, and the experiences of individuals living with or recovering from blood cancer.

Robert

non-Hodgkin lymphoma (NHL)

Family visiting a loved one during blood cancer treatment in a hospital room. A patient rests in a hospital bed surrounded by family members wearing protective masks, with medical equipment visible nearby. This powerful image highlights the impact of blood cancer on families, the importance of caregiver support, and the realities of leukemia, lymphoma, and other blood cancer treatments during hospitalization.

Brandon

Family member and supporter

Alec standing in front of LightThe Night signage in a park at a Light The Night event. Alec is wearing a blue shirt with the words, "Survivor, Light The Night" printed on it and holding a white Light The Night survivor lantern.

Alec

Primary mediastinal large B-cell lymphoma (PMBCL)

Headshot of Nastasha, shoulder length straight blonde hair, in a red jacket and smiling

Natasha

primary central nervous system lymphoma (PCNSL)

Snapshot of Tricia with her family, a cancer survivor

Tricia

Staff

Side-by-side portraits showing a blood cancer survivor and Team In Training participant in 2012 and 2022. In the first image, the individual wears a Team In Training shirt and points to the program logo. In the second image, the same individual stands wearing multiple race medals earned through endurance fundraising events. The photo illustrates a decade of resilience, survivorship, and advocacy in the blood cancer community, highlighting the impact of fundraising, patient support, and blood cancer research.

Max

non-Hodgkin lymphoma (NHL)

Black-and-white close-up portrait of a family gathered together at home, with a young child in the center and two adults nearby. The image highlights the importance of family support, connection, and resilience during a blood cancer diagnosis, reflecting the experiences of patients, caregivers, and loved ones navigating blood cancer treatment and survivorship together.

Maria

Hodgkin lymphoma (HL)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.