Leukemia

In December 1986, a week after my 15th birthday, I was diagnosed with acute undifferentiated leukemia (AUL) after having unclassifiable arthritis for two years. They now believe that I had pre-leukemic arthritis. So, when I was diagnosed, it was a blessing and a curse. It was a curse given how it turned my life upside down.

I was diagnosed with myelodysplastic syndrome (MDS) in December of 2020. I went through six treatments from January 2021 to June 2021. The treatments were a series of shots for seven days at the beginning of the month. In July 2021, I was approved for my stem cell transplant at The James Cancer Center, The Ohio State University in Columbus, Ohio. I had my stem cell transplant on July 29.

In July of 2009, I was diagnosed with small lymphocytic lymphoma (SLL) after a biopsy of the lymph nodes in my neck. Of course, I did what everyone says not to do. I went online to read about it. I read there was no cure, and the average lifespan after diagnosis was 10 years. I was 57 at the time, and all I could think was that’s not long enough. I don’t even have grandchildren yet!

I have leukemia/lymphoma and have been fighting this illness for seven years. 

I am writing this in 2022, but I never would have believed when acute lymphoblastic leukemia (ALL) struck my daughter in 2013, that it would feel like we were back at step 1.

My son was diagnosed with acute lymphocytic leukemia (ALL) in 1992 at 7 years old. Needless to say, it was a devastating blow to our family, and we were so scared! I had just gone through cancer illnesses with two other members of my family and knew how this diagnosis went. But my son, I never thought in a million years!

Lew developed leukemia from being in a building at Ground Zero on 9/11. He returned there every day afterward for over a year, breathing in the carcinogenic ash which compromised his immune system. He is currently in the World Trade Center Health Program.