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The RUNX1 Research Program

Contact:
Population Served:

Patients, caregivers, and healthcare professionals worldwide

Mission:

To improve the quality of life and prevent cancer in patients with the RUNX1-Familial Platelet Disorder (RUNX1-FPD); to promote awareness; to fund research about this hereditary blood disorder which predisposes an individual to develop a blood cancer in his or her lifetime.

  • Provides information, education and support to RUNX1-FPD patients and their families
  • Hosts scientific conferences and patient meetings
  • Funds independent research grants and grants in partnership to study RUNX1-FPD
  • Collaborates with RUNX1-FPD researchers and clinicians to facilitate research studies and improve patient outcomes. 

Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Blood cancer patient wearing a knit beanie and glasses embraces a loved one during a hospital visit. The image highlights the importance of caregiver support, resilience, and hope throughout blood cancer treatment. Set in a healthcare environment, the photo reflects the experiences of blood cancer patients and families navigating diagnosis, treatment, recovery, and survivorship together.

Kerrie

acute lymphoblastic leukemia (ALL)

leukemia patient weaing glasses and blue shirt at the beach

Paul

acute lymphoblastic leukemia (ALL)

Snapshot of Tricia with her family, a cancer survivor

Tricia

Staff

Jane, Hodgkin lymphoma (HL) patient, with companion

Jane

Hodgkin lymphoma

Gianna, Hodgkin lymphoma (HL) patient and advocate, pictured with other supporters

Gianna

Hodgkin lymphoma (HL)

Two people are sitting close together indoors near a window. One person is wearing a dark top, and the other is wrapped in a purple and black patterned blanket. The background shows part of a beige wall and a window frame with daylight coming through.

Kelsey

acute myeloid leukemia (AML)

Cyclist wearing a blood cancer awareness fundraising jersey rides a road bike during an organized endurance event. The jersey features blood cancer advocacy messaging and supports efforts to fund research, patient support, and treatments. The image highlights the dedication of blood cancer supporters, survivors, and advocates who participate in athletic fundraising events to help improve outcomes for people affected by leukemia, lymphoma, myeloma, and other blood cancers.

Bill

chronic lymphocytic leukemia (CLL)

Blood cancer patient sitting on a hospital bed during treatment alongside a supportive family member in a healthcare setting. Medical wristbands and treatment lines are visible, highlighting the realities of blood cancer care and recovery. The image reflects the vital role of caregivers, family support, and resilience throughout a blood cancer diagnosis, treatment, and survivorship experience, emphasizing hope and connection during a challenging time.

Elizabeth

Family member, caregiver, advocate

Side-by-side portraits showing a blood cancer survivor and Team In Training participant in 2012 and 2022. In the first image, the individual wears a Team In Training shirt and points to the program logo. In the second image, the same individual stands wearing multiple race medals earned through endurance fundraising events. The photo illustrates a decade of resilience, survivorship, and advocacy in the blood cancer community, highlighting the impact of fundraising, patient support, and blood cancer research.

Max

non-Hodgkin lymphoma (NHL)

Childhood photo of two young children sitting indoors in dress clothes in front of a couch and decorative pillows. The image represents the personal story behind a blood cancer survivor, highlighting the importance of childhood blood cancer awareness, patient support, survivorship, and hope for families affected by blood cancer.

Ali

Family member and supporter

Participants run in a road race near the iconic Unisphere in Queens, New York, during a community fundraising event supporting blood cancer patients, survivors, and blood cancer research. Several runners wearing race bibs move through the course on a bright sunny day, highlighting awareness, advocacy, and support for the blood cancer community.

Matt

Hodgkin lymphoma (HL)

Family of four posing together by a waterfront during a holiday celebration, with festive clothing and seasonal accessories. The image reflects the strength of families affected by blood cancer, highlighting the support, love, and togetherness that help patients and caregivers navigate blood cancer treatment, survivorship, and everyday milestones.

Jennifer

Mother and caregiver

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.