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Carla
I went to the hospital the end of April . I thought I had the flu. I expected to be given a couple of IVs and sent home. Instead the medical staff let…
Stories
Immune Deficiency Foundation
To improve the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. …
Towards Equity in Specialized Cancer Care for Adolescents and Young Adults with Newly Diagnosed Acute Lymphoblastic Leukemia
Our study is designed to directly inform the pathways through which health insurance influences access to care at an SCC for individuals with AYA ALL …
Rachel
Rachel was diagnosed with stage 4B Hodgkin lymphoma in February . She was years old. The moment when her oncologist first spoke the words “you have c…
Todd
This cause is dear to me because my grandmother, Anne Zavorskas, passed away several years ago from Hodgkin’s disease—a form of leukemia. Also, many y…
Aaron
Aaron was taken to urgent care after he developed a rash that didn't seem right. The next day, he was admitted into The Children's Hospital, and hour…
Gary
My stepdad Gary passed away from leukemia on October , . He began feeling ill in September ― lightheaded and dizzy. He took himself to the hospital, …
Wendy
I am a -time Hodgkin lymphoma (HL) survivor. I underwent two stem cell transplants. The first transplant was my own stem cells, the second transplant …
Danielle
I am currently on the Board of Trustees for The Leukemia & Lymphoma Society's Minnesota chapter. The reason why I decided to dedicate my time, talents…
Mark
On October , , my dad was diagnosed with acute myeloid leukemia (AML). I remember the day as if it was yesterday. It is so crippling. Right away, my d…
Peripheral neuropathy in children and teens
Cancer treatment, or sometimes the disease itself, can cause peripheral neuropathy—damage to nerves of the peripheral nervous system, which transmits …
Support Resources
Kelly
Every parent remembers the day their world fractured. For our family, that day was April , . For weeks, we thought our ½ year old daughter, Aaliya, wa…
Dare 2 Dream
Stories
Simantinee
It started when I was in my second year of studying engineering with a small lump on my neck. Dad's suspicion got me to the procedure room the next mo…
RECONNECT: Overcoming Racial and Ethnic Inequity in Clinical Trial Enrollment via Clinical Trial Nurse Navigation and Provider Communication Training
This study will implement a didactic course for providers to improve the quality of communication around structural racism, mistrust, implicit biases…
Printable Financial Worksheets
The worksheets below may help when you are thinking about the many financial concerns that come up after you have received a diagnosis of a blood canc…
Pregnancy & Cancer Registry
To collect information about the diagnosis and treatment of cancer in pregnancy, and to study the health of pregnant women with a history of cancer an…
Myelodysplastic syndromes (MDS) diagnosis
An accurate myelodysplastic syndromes (MDS) diagnosis is important to help your doctor establish your MDS subtype, estimate how the disease will progr…
Blood Cancer
Suggested Reading - Living with Cancer - A Step-by-Step Guide for Coping Medically and Emotionally with a Serious Diagnosis
Doctors Vicki A. Jackson and David P. Ryan have crafted a guide aimed at helping people with cancer grasp what’s happening to them while coping physi…
Special Love, Inc.
Special Love provides a strong, nurturing environment for children with cancer and their families through its free camps and getaway weekends, emergen…
Insure Kids Now / U.S. Department of Health & Human Services
InsureKidsNow.gov provides information about Medicaid and Children’s Health Insurance Program (CHIP) services for families who need health insurance c…
Needy Meds
To help people in need find financial assistance programs that help them afford their medications and costs related to health care. Needy Meds is an o…
Kemal
On July , , I noticed a large lump on the side of my neck. When it didn't go away after a couple of weeks, I went to see my doctor at the University o…
Hodgkin lymphoma treatment
Treatment for Hodgkin lymphoma is changing due to new drugs and research findings from clinical trials. Therefore, before treatment begins, it is impo…
Blood Cancer
Accessibility Statement
Blood Cancer United (BCU) is committed to ensuring that all users have equal access to its products and services, including through an accessible webs…
Barbara
In January , I was diagnosed with acute myeloid leukemia (AML). I was in disbelief that at years old, I had cancer. Because it was acute, I had to st…
Stories