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MPN Advocacy and Education International
To make a difference in the lives of those affected by myeloproliferative neoplasms. Offers disease, treatment and clinical trial information …
MPN Education Foundation
To bring education, information and emotional support to MPN patients; to increase awareness amongst patients, physicians and caregivers of myeloproli…
EBeauty
To provide all women, regardless of economic status, access to wigs in order to restore their and confidence during cancer treatments Offers a …
Wings of Hope
To change and save lives through the power of aviation. Provides medical air transport services, free of charge, to individuals who need special…
Biology and therapeutic targeting of cohesin mutations during myeloid malignancy development
We investigate the biology, genetics and treatment of myeloid malignancies, including CHIP, MDS and AML. Our goal is to improve our understanding of t…
Nicotinamide metabolism is essential for myelodysplastic syndrome stem and progenitor cell function and survival
Myelodysplastic syndrome (MDS) is a fatal disease with limited therapeutic opportunities. To increase survival rate, it is essential to identify thera…
Synthetic introns to target U2AF1 mutant leukemias and dissect molecular basis for mis-splicing
Mutations affecting RNA splicing factors are the most common class of mutations in patients with myelodysplastic syndromes and related myeloid neoplas…
Histiocytosis Association
Dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatm…
Overcoming RAS-driven Mechanisms of Resistance in Leukemia
The protein kinase (MAPK) pathway is activated in leukemia and is a hallmark of resistance to therapies. This project uses xenograft models of rela…
Inflammation-responsive mechanisms of malignant stem cell generation and eradication in multiple myeloma
The focus of my research is to elucidate the core molecular regulators of malignant stem cell generation in multiple myeloma. My approach addresses th…
Modeling LSC heterogeneity at unprecedented resolution in AML
Our goal is to perform molecular characterization of human leukemia stem cells (LSCs). We have developed an integrated set of techniques that will a…
Targeting Microenvironment Determinants in Peripheral T-cell Lymphoma
Peripheral lymphomas are highly aggressive blood cancer that have very poor survival rate, highlighting the need for new therapies to improve patient…
Suggested Reading - Henry and the White Wolf
Written and illustrated by a teenage brother and sister, this is an allegory about a sick hedgehog that is healed by the feared white wolf. Geared to …
Suggested Reading -The Scars, Aligned
The Scars, Aligned follows the author's journey through the many phases of a cancer patient’s experience and interweaves lines of famous poetry. He co…
How Do I? Video series
In our series of short videos, cancer survivors and experts guide you through issues that you may face after a cancer diagnosis. Topics include:Insur…
Education Resources
Biosimilars versus generic drugs
Biosimilars and generic drugs are both created based on existing drugs. The drug is called either as a “reference product” or a “reference medicine…
Support Resources
Parenting with blood cancer
Most parents struggle to fit everything into their family’s schedule, even without the demands of cancer and cancer treatment. It’s important to accep…
Support Resources
Parenting as a young adult with blood cancer
Most parents struggle to fit everything into their family’s schedule, even without the demands of cancer and cancer treatment. It’s important to accep…
Support Resources
Biosimilars versus generic drugs for young adults
Biosimilars and generic drugs are both created based off existing drugs. The brand name drug is called either a “reference product” or a “reference …
Support Resources
Berenise
On October , , as a senior in college, I was spontaneously diagnosed with acute myeloid leukemia (AML). I was immediately admitted into the hospital …
Stories
Todd
In July of , I had what I thought was a lingering summer cold. After several days of feeling terribly fatigued, I started noticing my gums were tender…
Steve
In June of , I went to my primary care physician for a routine physical. Lab work revealed an abnormally low white blood cell count, triggering a bone…
Hillary
My leukemia story started in February . I was short of breath, so I had some basic bloodwork. It came back really abnormal, and I was told to proceed …
Zoie
My mom thought it was the flu, maybe mono. After I spent five days lying in bed, she took me to an Urgent Care Clinic. I knew it was something far mor…
Living with Acute Leukemia
Leigh
In August , I developed pneumonia for the third time in two years. I had been finding that my ability to fight off illness was not as good as it used …