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Taylor
In February of 2019, I was diagnosed with stage 4 Hodgkin lymphoma (HL). What started with a simple cough quickly turned into the most challenging yea…
Work, School & Finances
Work and School Some people continue to work or attend school through cancer treatment, but others are not able to do so. Talk to your healthcare t…
Amyloidosis Research Consortium
To accelerate the development of advanced diagnostic tools and effective treatments for systemic amyloidosis. Provides disease information, publ…
Austin
In May 2011, when Kimberly Schuetz was starting to plan her son Austin’s third birthday, he was diagnosed with a high-risk form of acute lymphoblastic…
Suggested Reading - Shelter from the Storm: Caring for a Child with a Life-Threatening Condition
Shelter from the Storm: Caring for a Child with a Life-Threatening Condition By Joanne Hilden, M.D., and Daniel R. Tobin, M.D. Perseus Publishing, 20…
Martin
I have a unique story. In 1978 after being married for three weeks, my wife was diagnosed with acute lymphoblastic leukemia (ALL). Seven months later …
Cleveland Clinic 4th Angel Mentoring Program
To provide personalized peer support empowering those affected by cancer and its treatmentMatches individuals impacted by cancer for one-on-one suppor…
Navigating your blood cancer care
Navigating a blood cancer diagnosis isn’t always simple or straightforward—but we’re here to guide you through it. Whether you’re newly diagnosed, in …
Support Resources
American Brain Tumor Association (ABTA)
ABTA is committed to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives …
Sarah
My name is Sarah and I am a six-year Hodgkin’s lymphoma survivor. I’m extremely honored to not only be in attendance today but to also share my story.…
Zac
In 2019, at 32, several symptoms culminated and, in hindsight, were red flags to the disease progression of acute myeloid leukemia (AML). I was less t…
Education Resources
Other Disease Studies
Another type of study that blood cancer patients and their relatives can participate in is a nontherapeutic study. Nontherapeutic studies aren't consi…
Lyra
Lyra is a confident three-year-old who spreads joy wherever she goes! She loves to sing, dance, draw, snuggle while reading stories and is rarely seen…
Hirsch Wellness Network
To support the emotional and physical needs of cancer survivors, patients in treatment, and caregivers by providing therapeutic arts and wellness prog…
CureSearch for Children's Cancer
To fund and support targeted and innovative children's cancer research with measurable results, and be the authoritative source of information and res…
Lymphatic Education & Research Network
To fight lymphatic diseases and lymphedema through education, research, and advocacy.Provides disease, treatment and clinical trial information; patie…
Acute Leukemia Advocates Network (ALAN)
To change the outcomes of acute leukemia patients by strengthening patient advocacy. ALAN is an independent global network of patient organizati…
Sexual health and intimacy for young adults
As a young adult you may be dating, in a relationship, or married. Cancer can make navigating romantic relationships complicated.Dating when you have …
Support Resources
The Year My Dad Went Bald
The Year My Dad Went Bald: A Tale of Cancer, Chemo and Coping with a Cold Head By Brian Kraft Bang Press, 2010, 36 pages ISBN 9780615421544 Ages 6…
Exploiting escape from Y-inactivation as a synthetic dependency in MYC-driven lymphoma
Chimeric antigen receptor (CAR) T cell therapy is a form of immune-based therapy where a patient’s own immune cells are genetically engineered to reco…
Exploiting escape from Y-inactivation as a synthetic dependency in MYC-driven lymphoma
Chimeric antigen receptor (CAR) T cell therapy is a form of immune-based therapy where a patient’s own immune cells are genetically engineered to reco…
Enhancing the “fitness” of anti-BCMA CAR T cells for improved efficacy in multiple myeloma
Chimeric antigen receptor (CAR) T cell therapy is a form of immune-based therapy where a patient’s own immune cells are genetically engineered to reco…
Novel CD7 CAR T-cells for refractory T-cell malignancies affecting pediatric and AYA patients
T-cell leukemias and lymphomas have devastating outcomes if they recur after or don’t respond to standard treatment, with the only hope of cure being …
Marko
I am 18 years old and from a small town in New Jersey. I was diagnosed with stage 4 anaplastic large cell lymphoma (ALCL). I have spent my whole senio…
Dare 2 Dream
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Lashi
Lashi, a Chesterfield native, was diagnosed with Hodgkin lymphoma in 2011 at 26 years old after discovering a lump under the left side of her chin. Lu…