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Sasha
When five-year-old Sasha had her birthday in June, there was more to celebrate this year — she had just gotten her port removed and was officially don…
CLL Society
To address the unmet needs of the CLL patient and related blood cancer communities Provides disease, treatment and clinical trial information …
Daniel
My son was diagnosed with acute lymphocytic leukemia (ALL) in 1992 at 7 years old. Needless to say, it was a devastating blow to our family, and we we…
Suggested Reading - Diagnosis Cancer: Your Guide to the First Few Months of Healthy Survivorship, Expanded and Updated
Diagnosis Cancer: Your Guide to the First Few Months of Healthy Survivorship, Expanded and Updated By Wendy Schlessel Harpham, M.D. W.W. Norton, 2003…
INTO-HLH: Hemophagocytic Lymphohistiocytosis Disease Registry
INTO-HLH (Insight into the Natural History and Treatment Outcomes of Hemophagocytic Lymphohistiocytosis) is a disease registry aimed at advancing what…
National Comprehensive Cancer Network (NCCN)
To improve the quality, effectiveness, and efficiency of cancer care so that patients can live better lives. Alliance of leading cancer centers …
Chemo Angels
To offer support and encouragement to cancer patients in treatment Volunteers send cards and uplifting messages to cancer patients via postal ma…
Giavanna
Giavanna was diagnosed with acute lymphoblastic leukemia (ALL) shortly after her fifth birthday. After two years of treatment, she continues to do gre…
Jim
My brother Jim was an amazing man. He was a person for whom family was everything. He ran a plumbing business with his brothers and took pride in its …
Fiorella
In September 2017, I was diagnosed with stage 2 Hodgkin lymphoma (HL), which is cancer that starts in the lymphatic system. My oncologist went over my…
Sal
Meet Sal. Chronic Myeloid Leukemia Survivor. Florida. Sal was diagnosed with chronic myeloid leukemia (CML) before his daughter Olivia celebrated her …
Maggie
My son, Benjamin, was diagnosed with acute lymphoblastic leukemia in February 2019 at the age of four. Due to the unique nature of his presentation, h…
Dare 2 Dream
Sexual health side effects in young adults
An important part of managing side effects that impact your sexual health is to determine what factors may be causing or contributing to the changes y…
Support Resources
Supporting allogeneic CD371 (CLL-1) CAR development for acute myeloid leukemia
In February 2021, LLS made an equity investment in Caribou Biosciences to "Support allogeneic CD371 (CLL-1) CAR development for acute myeloid leukemia…
The National Children’s Cancer Society
To improve the quality of life for children with cancer and their families worldwide. Provides financial and emotional support to families throu…
King
King has a rare combination of a blood cancer called leukemia (high risk) and G6PD which is an incurable, lifelong blood disorder. His treatment plan …
Communicating with your specialist or care team
Communication with your specialist and the team coordinating your care is very important. Tell your doctor how much you want to know about your diagno…
Communicating with your child's specialist or care team
Communication with your child’s specialist and the team coordinating their care is very important. Tell your doctor how much you want to know about yo…
Support Resources
Suggested Reading - CAR T-Cell Therapy: What to Expect
CAR T-Cell Therapy: What to Expect Before, During and After by Susan K. StewartPublished by Blood & Marrow Transplant Information Network, 2020, 26 Pa…
Catherine
I was diagnosed in December 2013 with blood cancer. I started my treatment in January 2014. I continued treatment until March 2018 until I had a Bone …
Good Days from CDF
Helps patients with chronic disease, cancer and other life-altering conditions obtain the life-saving medications they need. Requires that patie…
Knots of Love
To provide a free lovingly hand-knit or crocheted beanie to people going through chemotherapy. Beanies are delivered free of charge to treatment…
Online Chats
Coronavirus (COVID-19) Chat for Patients and Caregivers We are holding an online chat to provide support and an opportunity to connect during these…
Harper
In the late summer of 2021, 8-year-old Harper returned to in-person school for the first time since March 2020 for the start of third grade. Shortly a…
When your child has cancer
Hearing that your child has cancer is terrifying for any parent. Today, most childhood cancer patients can expect to have full and productive lives. M…
Caregiver
Support Resources