Link
Mission
Contact
773-977-7216
Population Served
People diagnosed with a myeloproliferative neoplasm (MPN) worldwide
To stimulate original research in pursuit of new treatments and eventually a cure for polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms; to promote collaboration in the scientific community to accelerate research; and to serve as a powerful advocacy group for patients and their families.
- Links patients to support groups worldwide.
- Educates and empowers the MPN community of patients, family members, doctors and researchers.
- Distributes MPN patient brochures and a newsletter to inform patients on key advances in MPN research.
- Sponsors patient conferences.
- Interfaces with government organizations on key patient issues.
- MPN PROGRESSion Registry™ a patient-focused research initiative that collects comprehensive, long-term, myeloproliferative neoplasm (MPN) patient health data.