Project Term
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Project Summary
Black and Hispanic individuals diagnosed with Hodgkin lymphoma (HL) face worse survival rates across all ages. Using an innovative data source, this study will examine differences by insurance status in the receipt and quality of HL treatment in Aim 1 and care engagement and support after treatment (survivorship care) in Aim 2. Using diverse patient voices, this study will characterize and understand how patients make decisions about treatment and survivorship care by insurance type in Aim 3.
Lay Abstract
Despite Hodgkin lymphoma’s (HL) favorable prognosis, Black and Hispanic patients have worse survival rates compared to White patients. Insurance status and non-White race and ethnicity are associated with the inequitable receipt of optimal treatments, as well as survivorship care. Patients’ decision-making experiences with their clinicians influence cancer care, and shared decision-making (SDM) is central to patient-centered care when patients have multiple treatment options. However, in hematologic cancer care, many physicians underestimate patient preference for SDM, and HL survivors report minimal involvement in decision-making about their treatment and care.
Program
