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Caring for Kids and Adolescents with Blood Cancer: A Workbook for Families

The information in the Caring for Kids And Adolescents with Blood Cancer workbook is written for the parent/guardian of a minor child (up to age 18), and includes information about caring for your child, treatment options, school, nutrition, financial and legal issues, and more. This Family Workbook includes a set of worksheets and activities and includes a tote, journal, pen and pill organizer.

Caregivers may order a copy of the full workbook by calling (800) 955-4572.


Workbook chapters

Access the following chapters of the Family Workbook. Caregivers may order a copy of the full workbook by calling (800) 955-4572.


Workbook worksheets

Use the following worksheets to help you in your caregiving role:

This workbook is intended for caregivers of kids and adolescents. We also have caregiving information for adults.
Worksheet 1: Emergency Room (ER) Plan (PDF)Worksheet 11: Grocery List
Worksheet 2: Weather Emergency Plan (PDF)Worksheet 12: Chore Chart (PDF)
Worksheet 3: Questions for You to Ask Your Child (PDF)Worksheet 13: Food Intake and Side-Effects Log (PDF)
Worksheet 4: Healthcare Team Contact List (PDF)Worksheet 14: Meal Planning (PDF)
Worksheet 5a: Appointment Calendar, by Month (PDF)Worksheet 15: Information for School Staff (PDF)
Worksheet 5b: Appointment Calendar, by Week (PDF)Worksheet 16: Insurance Call Log (PDF)
Worksheet 5c: Appointment Details (PDF)Worksheet 17: Understanding the Health Insurance Plan (PDF)
Worksheet 6: Questions for the Healthcare Team (PDF)Worksheet 18: Health Insurance Appeal Tracking Form (PDF)
Worksheet 7: Medical History (PDF)Worksheet 19: Budgeting (PDF)
Worksheet 8: Immunization Record (PDF)Worksheet 20: Financial Assistance Record (PDF)
Worksheet 9: Daily Medication Log (PDF)Worksheet 21: Creating a Self-care Plan (PDF)
Worksheet 10: Pain Log (PDF) 

Sponsors and supporters 

Support for for these caregiver resources provided by:

Get free, one-on-one support

Call, email, or chat with a member of our highly trained support team.

Henry, blood cancer survivor

Henry blood cancer survivor

Blood Cancer United Dare to Dream Project – Transforming treatment and care for kids

Kids deserve better.

Help transform treatment and care for kids and support all of the life-saving work that Blood Cancer United does.

Learn more

Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.

Ashlee

caregiver

Kari

acute lymphoblastic leukemia (ALL) in memory

Darryl

volunteer

Leigh, in front of windows in a very tall building, city below, with her Big Climb medal and t-shirt

Leigh

Chronic myeloid leukemia (CML)

Headshot of Imani in her white nursing coat

Imani

myelodysplastic syndrome (MDS)

Fast Company Brands That Matter 2022 Logo

Chase

Leukemia Survivor

Jay, volunteer, and friend in candid photo

Jay

Volunteer

Manny smiling wide at 10ish years old in a white shirt

Emmanuel "Manny"

Acute myeloid leukemia (AML)

Snapshot of Blaine Davis in hospital room, a cancer survivor

Blaine

Leukemia Survivor

Katie, primary mediastinal large B-cell lymphoma (PMBCL) patient

Katie

primary mediastinal large B-cell lymphoma (PMBCL)

Holly

subcutaneous panniculitis-like T-cell lymphoma (SPTCL)

Lori

follicular lymphoma (FL)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.