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Skylar is
Blood Cancer United

As a parent, there are few words that can knock you on your feet. “Your child has cancer” is one of those phrases that can make you fall apart in an instant.

At the tender age of 4, my daughter Skylar was diagnosed with B-cell acute lymphoblastic leukemia (ALL). It started with fevers and leg pains. She was often seen by her pediatrician who chalked up her symptoms to growing pains. Mom knew something was wrong. After a rough week of high fevers, Skylar’s parents decided to take her to the ER. Upon looking over her blood work, the doctors instantly knew something was wrong. This began Skylar’s cancer journey. Skylar took the news with positivity and determination. Although she was young, she was brave. She completed her treatment in December 2016.

Skylar and her family became big advocates for childhood cancer awareness after this. They hosted benefit concerts, sold merchandise, and authentically shared Skylar’s story. They were able to fundraise over $25,000 for children’s hospitals around the U.S.

After battling one cancer diagnosis, the last thing you want to hear is “Your daughter has relapsed.” Skylar was 7 months shy of celebrating her 5-year cancer-free anniversary. This celebration is big! Her risk of relapse would have decreased significantly. However, she started experiencing some of the same symptoms she had when she was 4. Her parents advocated for her oncology team to check her bloodwork. Again, they knew something was wrong. The second cancer diagnosis was defeating. Skylar’s body and bone marrow could not handle the chemotherapy as well. Her immune system was so compromised due to chemo. This made Skylar highly susceptible to infections. She contracted a rare and highly aggressive fungal infection in her brain called mucormycosis. With an amazing neurosurgery, infectious diseases, and oncology team—Skylar miraculously survived this diagnosis. She continues her chemotherapy treatment to this day.

“Cancer will not stop me! I will continue to live my life and be happy.”— Skylar

Español

“Hay pocas palabras que pueden derrumbar a un padre o una madre. ‘Su hijo tiene cáncer’ es una de esas frases que pueden destrozarte en un instante.

A mi hija Skylar le diagnosticaron leucemia linfoblástica aguda de células B (ALL, por sus siglas en inglés) cuando tenía 4 años. Comenzó con fiebre y dolores en las piernas. La llevábamos con frecuencia al pediatra, quien atribuyó sus síntomas a dolores debidos al crecimiento. Sabíamos que algo estaba mal. Después de una dura semana de fiebres altas, decidimos llevarla a urgencias. Al revisar los resultados de sus análisis de sangre, los médicos supieron de inmediato que algo estaba mal. Así empezó la experiencia con el cáncer de Skylar. Ella recibió la noticia con actitud positiva y determinación. A pesar de su corta edad, fue valiente. Completó su tratamiento en diciembre del 2016.

Después de eso, nos convertimos en grandes defensores de la concienciación sobre el cáncer infantil. Organizamos conciertos benéficos, vendimos mercancía y relatamos de manera genuina la historia de Skylar. Nuestra familia recaudó más de $25,000 para donarlos a hospitales infantiles por todo EE. UU.

Después de luchar contra un diagnóstico de cáncer, lo último que uno desea escuchar es ‘Su hija tiene una recaída’. Skylar estaba a escasos 7 meses de celebrar sus 5 años en remisión. ¡Se trataba de una gran celebración! Su riesgo de recaída había disminuido considerablemente. Sin embargo, comenzó a manifestar algunos de los síntomas que presentó cuando tenía 4 años. Solicitamos que el equipo de profesionales de oncología revisara sus análisis de sangre. De nuevo, sabíamos que algo andaba mal.

El segundo diagnóstico de cáncer fue frustrante. El cuerpo y la médula ósea de Skylar no podrían soportar tan bien la quimioterapia. Su sistema inmunitario estaba muy afectado debido a la quimio. Esa situación provocó que Skylar fuera sumamente susceptible a las infecciones. Contrajo una infección fúngica poco frecuente y muy agresiva, denominada mucormicosis, que afectó su cerebro. Gracias a un maravilloso equipo de especialistas en neurocirugía, enfermedades infecciosas y oncología, Skylar sobrevivió milagrosamente tras su diagnóstico. Continúa con su tratamiento de quimioterapia hasta la fecha.

‘¡El cáncer no me detendrá! Seguiré viviendo mi vida y siendo feliz’. Skylar”


#ChildhoodCancerAwarenessMonth #NationalHispanicHeritageMonth #NHHM

Skylar

B-cell acute lymphoblastic leukemia (ALL)

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.
Nicole standing outside holding a large Team Nicole Light the Night banner with 2 friends, smiling

Nicole

B-cell Acute Lymphoblastic Leukemia (B-ALL)

Photo collage Nate in treatment, on IVs bald, in bed, then Nate standing tall and looking healthy

Nate

ALL Survivor

deanna-w_0_dam_file_20671.jpg

Deanna

ALL Survivor

collage photo of patient

Jim

ALL Survivor

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Shobha

acute lymphoblastic leukemia (ALL)

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Kerrie

acute lymphoblastic leukemia (ALL)

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Paul

acute lymphoblastic leukemia (ALL)

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Kelli

Philadelphia chromosome-positive B-cell acute lymphoblastic leukemia (Ph+ B-ALL)

Young child receiving medical care in a hospital bed with a nasal feeding tube, wearing a colorful shirt with animal prints. The image highlights the realities of childhood blood cancer treatment while showcasing strength, hope, and resilience. This photo represents the experiences of pediatric blood cancer patients and families navigating treatment, supportive care, and survivorship.

Kyle

Family member and caregiver

five-year-old leukemia survivor, Vera Padilla of Sacramento, CA

Monica

Family member, caregiver, advocate

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Nevaeh

acute myeloid leukemia (AML+MLLr)

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Henry

B-cell acute lymphoblastic leukemia (B-ALL)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.