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John is
Blood Cancer United

Young boy, wearing mask in hospital bed, with another young boy in mask, standing next to bed

After six months of frequent hospital and doctor visits for unexplained fever, weakness, and changes in John's activity and personality, an ultimatum to his primary care pediatrician led to a blood draw. Finally, after so much unknown, we had an answer, B-cell acute lymphoblastic leukemia (ALL). This was May 24, 2022, exactly one month prior to John's 7th birthday. The news allowed us to understand, however, it also threw the entire family into chaos. We immediately endured 11 days of inpatient treatment and multiple procedures. John was strong but very scared and confused. Add to this, John is an identical twin. Donald, his twin, could see changes in his brother and his life but couldn't grasp what was happening. Why was their birthday canceled, why was John so moody, and why was John getting so much attention? The life changes had just begun, and we, as a family, leaned on the community for support. While many people do not know what to say or do, they try. As John continues to fight, his twin must be tested monthly for leukemia. Keeping faith in family and community continues to drive us forward on the long journey.

Story written by family member.

John

B-cell acute lymphoblastic leukemia (ALL)

We are Blood Cancer United.

Everyone affected by blood cancer—patients, survivors, caregivers, researchers, advocates, fundraisers, everyone—has a story. Share yours.

Kayla

T-cell acute lymphoblastic leukemia (T-ALL)

Sara

acute lymphoblastic leukemia (ALL)

Paul

acute lymphoblastic leukemia (ALL)

Maggie

volunteer and caregiver

Eliza Cate

acute lymphoblastic leukemia (ALL)

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acute lymphoblastic leukemia (ALL) and acute myeloid leukemia (AML)

Sofia

pre-B-cell acute lymphoblastic leukemia (pre-B-ALL)

Jess

acute lymphoblastic leukemia (ALL)

Kim

Parent and Caregiver

Maverick

B-cell acute lymphoblastic leukemia (B-ALL)

Rex

Philadelphia chromosome-positive acute lymphoblastic leukemia (Ph+ ALL)

Nevaeh age 2 standing outside in a lacy white summer dress, cowbow boots and hat, and a huge smile

Nevaeh

acute myeloid leukemia (AML+MLLr)

The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.