Non-Hodgkin Lymphoma (NHL)

I'm here and going strong, drumming in a rock band six+ years after my stage 4 mantle cell lymphoma (MCL) diagnosis. At that time, I chose to enter a clinical trial, and I started treatment as soon as possible. I was and am so grateful that treatments for two years with chemo and antibodies allowed me the energy to continue working full-time and to conduct a close to normal life.

I was first diagnosed with non-Hodgkin lymphoma (NHL) in my 20’s. I had a three-year-old daughter and a husband. I went through six months of chemo and continued working full-time as a nurse in homecare the whole time. I was told that if I was to have a reoccurrence, it would come back as leukemia within 10 years. I harvested my bone marrow after chemo and saved it for the 10-year time frame.

I was diagnosed with stage 3 follicular lymphoma (FL), a type of non-Hodgkin lymphoma (NHL), at the end of 2017, and our world was turned upside down. I lived a pretty healthy lifestyle, stayed active, and ate well. I never thought I would be diagnosed with cancer until I received the phone call from my hematologist/oncologist late on a Friday night.

We were lucky. It seems strange to frame it that way, but it's true.

At age 60, I stopped working as a full-time physical therapist and started working PRN at two different facilities. My reasoning was I could help my elderly but healthy parents when needed and help out with my grandkids. Everything was going great until the COVID-19 pandemic hit. I was laid off from both jobs.

In January of 2016, my dad was diagnosed with stage 4 non-Hodgkin lymphoma (NHL). He was unresponsive to treatment. He went into remission, but it quickly came back. The clinic said they couldn’t do anything more, so he was referred to the University of Minnesota for a clinical trial. The treatment included me, as his daughter, donating my T-cells.

November 2007 was the start of my journey as a cancer warrior and survivor. I was diagnosed with Diffused Large B cell non-Hodgkin lymphoma (NHL) and it is incredible for me to reflect on the fact that I am coming up on my 15^th year anniversary of diagnosis and treatment.

I was sitting alone in a stark, clean examination room on September 16, 2021, at the Dana Farber Cancer Institute (DFCI) in Brookline, Massachusetts when my oncologist walked in. I called my spouse and son on my cell phone so they could hear the results.

Christian Macias survived two battles with cancer, the first being in 2010. He was diagnosed with stage 2 Non-Hodgkin Burkitt’s lymphoma (NHL). He fought long and hard. Unfortunately, a few years later in 2017, his cancer came back in a different form. This time he was diagnosed with stage 3 Hodgkin lymphoma (HL).