Other Blood Cancers

Lolo was a happy and active 10-year-old when she was diagnosed with pediatric acute myelocytic leukemia (AML) in December 2012. She spent the next six months at Children’s Hospital in Omaha, Nebraska, isolated from her classmates and critically ill.

Lori’s journey to becoming a Leukemia & Lymphoma Society (LLS) volunteer began back in 2002 through her own experience with being diagnosed with Myelofibrosis (MF). Lori had just embarked on a new job as a real estate agent to a new home builder when she began to feel extremely tired and have pain in her hands.

Our son Dominic was diagnosed with MLL-rearranged acute myeloid leukemia (AML) on July 14, 2020. The mixed-lineage leukemia (MLL) gene rearrangement in AML is considered a high-risk feature, and treatment typically involves high-dose chemotherapy to induce remission followed by bone marrow transplantation. The MLL-rearrangement is also called the KMT2A-rearrangement or 11q23 rearrangement.

There came a day when we had to ask her to choose. We laid out the options carefully not wanting to alarm her with the hopelessness behind either.

My introduction to The Leukemia & Lymphoma Society (LLS) began in the early 2000s. I joined a Light The Night Team to support research and programs for cancer patients. I then discovered Team In Training and ran my first marathon and my second as a Team Mentor. At the time, I knew cancer was a terrible disease, but it wasn’t until 2012 that cancer became more personal.

Jess Meyer began volunteering with The Leukemia and Lymphoma Society (LLS) in February 2021. Jess is currently pursuing her Patient Advocacy certificate and found an opportunity to join LLS as a volunteer, in order to gain more experience working with the Patient & Community Outreach department.

I am a physician-scientist with a primary focus on treating and understanding blood cancers like MDS and AML. It's a job I love and one that has given a lot back to me over the years. However, it was also a very unlikely outcome for me. I was born in Montevideo, Uruguay where I lived until I was 5 years old.