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Caregiver Workbook

The Caregiver Workbook was selected as a Gold Award winner in the annual National Health Information Awards℠ program, which recognizes the nation's best consumer health information programs and materials.

 


This workbook is intended for caregivers of adults. If you are a parent of a minor child who has blood cancer, click here for Caring for Kids and Adolescents with Blood Cancer: A Workbook for Families.



This Caregiver Workbook is a guide to use throughout your time as a blood cancer patient’s caregiver. Caregivers may order a copy of the full workbook by calling (800) 955-4572. In this workbook, you will find:

  • Caregiving tips and strategies
  • Questions to ask the healthcare team
  • Nutrition guidelines
  • Financial, legal and health insurance information
  • Self-care suggestions
  • Resources for additional support
  • Worksheets and activities

The Caregiver Workbook comes in a tote with a journal, pen and pill organizer.

Caregivers may order a copy of the full workbook by calling (800) 955-4572.

Chapters

To read the following chapters of the Caregiver Workbook, click here.

  • Introduction to Caregiving
  • Communicating as a Caregiver
  • Understanding Blood Cancers
  • Treatment Options
  • Side Effects and Supportive Care
  • Caregiving During Treatment
  • Nutrition
  • Financial and Legal Information
  • Caring for Yourself
  • End of the Caregiver Role

Caregivers may order a copy of the full workbook by calling (800) 955-4572.
 

Worksheets

 Use the following worksheets to help you in your caregiving role:
 

Worksheet 1: Emergency Room (ER) Plan

Worksheet 10: Pain Log

Worksheet 2: Weather Emergency Plan

Worksheet 11: Grocery List

Worksheet 3: Daily Medication Log

Worksheet 12: Chore Chart

Worksheet 4: Questions for Caregivers to Ask Their Loved Ones

Worksheet 13: Food Intake and Side-Effects Log

Worksheet 5: Healthcare Team Contact List

Worksheet 14: Meal Planning

Worksheet 6a: Appointment Calendar, by Month

Worksheet 15: Insurance Call Log

Worksheet 6b: Appointment Calendar, by Week

Worksheet 16: Understanding the Health Insurance Plan

Worksheet 6c: Appointment Details

Worksheet 17: Health Insurance Appeal Tracking Form

Worksheet 7: Questions for the Healthcare Team

Worksheet 18: Budgeting

Worksheet 8: Medical History

Worksheet 19: Financial Assistance Record

Worksheet 9: Immunization Record

Worksheet 20: Creating a Self-Care Plan

 


Support for these caregiver resources provided by Pfizer Inc. and Takeda Oncology.

Blood Cancer United resources

Find free, specialized guidance and information for every type of blood cancer, request financial support, find emotional support, and connect with other members of the blood cancer community.

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The Leukemia & Lymphoma Society (LLS) is now Blood Cancer United. Learn more.